HELP FOR FAMILIES
NJCTS is committed to supporting individuals and families affected by Tourette Syndrome (TS) and associated disorders. We provide a continuum of services, support, and education for families; outreach and training for medical and educational professionals; and advocacy for collaborative research for better treatments and a cure for TS.
Your first step is to call us at 908.575.7350 or email us at firstname.lastname@example.org. If you are calling/emailing outside of normal business hours, please let us know the best time to call you back. A family intake coordinator will get back to you ASAP.
Here are just some of the ways NJCTS provides help for families:
Physician Referral List: NJCTS’ Physician Referral List is comprised of more than 200 neurologists, psychiatrists, psychologists, counselors, and social workers with expertise in treating TS. Our referral is a direct link for families to medical professionals who treat TS, ADHD, OCD, anxiety, and depression. Please call us at 908.575.7350.
Join Our Family Forum: The Family Forum is a safe space for families with similar experiences to go and communicate. Please click here for a detailed description on how to access the forum and how to use it. Then visit the group here: familyforum.njcts.org
Special Education Attorney List: NJCTS has an updated list of lawyers and firms that handle issues with IEPs, IDEA and 504 plans. Please call us at 908.575.7350.
Webinars: NJCTS’ Wednesday Webinar series was launched in 2008 and today draws an audience from 48 states and more than 15 countries. The series has featured more than 100 online seminars for parents, educators and professionals on topics of interest to the TS and associated disorders community, such as anxiety, OCD, sensory issues, bullying, school accommodations, and much more. View our past webinars.
Education and Medical Outreach: For more than a decade, NJCTS has developed and offered the Faculty In-Service Program, which is geared toward education professionals in elementary and secondary schools, while Youth Advocate Presentations reach tens of thousands of children and adolescents through activities that emphasize understanding, empathy, compassion, awareness, and growth. Medical Outreach is provided through Patient-Centered Medical Education, a unique presentation in which physicians and residents hear directly from youth and families, and Grand Rounds presentations in which an experienced medical clinician provides an overview of diagnosis and treatment options for TS and tic disorders. Learn more.
Family Retreat Weekend: Since 2004, NJCTS has welcomed families to enjoy some time away from it all at the NJCTS Family Retreat Weekend at YMCA Camp Bernie in beautiful Hunterdon County. The “best weekend of the year” allows children and their families to meet others with TS, learn more about their diagnosis, and engage with peer mentors in a fun, safe environment. Would you like to join us for the next retreat?
NJCTS Tim Howard Leadership Academy: Launched in 2014, the NJCTS Tim Howard Leadership Academy is a four-day intensive program that takes place in state-of-the-art dormitories on Busch Campus at Rutgers University. Participants work, play, eat, and sleep at Rutgers and enjoy a wide range of activities aimed at developing self-leadership, advocacy skills, and resilience in teens with TS and its associated disorders.
NJCTS Tourette Syndrome Practicum and Clinic: NJCTS, in collaboration with Rutgers University, presents the nation’s first university-based, stand-alone teaching practicum and clinic for the psychological evaluation and cognitive-behavioral treatment of TS. The program trains a new generation of professionals with interest and expertise in treating TS. The TS Clinic offers individual, family, and group therapy; cognitive-behavioral therapy; habit reversal therapy; social skills development sessions; referrals to physicians and testing services. Learn more.
Resource Room: We have compiled useful documents and links to help you navigate your diagnosis, treatment plan and school services.
NJCTS Recommended Publications: NJCTS has compiled a listof helpful books and other publications and videos about TS and its associated disorders.
Volunteer: NJCTS would not be able to provide its myriad programs and services if not for its vibrant, dedicated volunteers! That’s YOU! We are always in need of teens, adults, and families to help spread the word, get some office work done, or help out at an event. If you would like to get involved and give back to an organization that has helped you, your family or friends, please take a moment to contact our office at email@example.com or 908-575-7350.