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Employment Opportunities

Executive Director – Hybrid Work Schedule

Updated: April 2024

The New Jersey Center for Tourette Syndrome and Associated Disorders (“NJCTS”) is seeking a dynamic and caring Executive Director to join our amazing team. NJCTS is a non-profit organization whose mission is to ensure children and adults with Tourette Syndrome (“TS”) and associated disorders are empowered and accepted through education, advocacy, and research.

NJCTS provides a challenging, motivational  and flexible work environment. At NJCTS, we are rewarded daily with the work we do as the premier organization in the country that provides programming and services for people and families living with Tourette Syndrome and associated disorders.  We seek an Executive Director who is detail oriented, adept at multitasking, brings passion to their work, seeking to become part of a dynamic team working to improve the lives of those in the TS community.

Position Summary:  Reporting to the Board of Trustees, the Executive Director is responsible for leading the strategic planning, administration and program development for the organization. Other key duties include fundraising, marketing and community outreach.

Key Responsibilities:   

  • Board Governance – works with the Board of Trustees to fulfill the organization’s mission and vision.
    • Responsible for leading NJCTS in a manner that supports and guides the organization as defined by the Board of Trustees. 
    • Responsible for communicating effectively with the Board and providing, in a timely and accurate manner, all information necessary for the Board to function properly and to make informed decisions.
  • Financial Performance and Viability – Develops resources sufficient to ensure the financial health and wellbeing of the organization.
    • Responsible for the fiscal integrity of the organization, which includes oversight of the submission to the Board of the proposed annual budget, financial statements, and the annual audit. 
    • Responsible for fiscal management that generally operates within the approved budget, ensures maximum resource utilization, and maintains the organization in a positive financial position.
    • Expand existing and generate new funding sources and fundraising activities to support the organization’s programs and operations. 
  • Organization, mission and strategy – Works with the board and staff to ensure that the NJCTS mission is fulfilled through oversight and development of programs, strategic planning and community outreach.
    • Responsible for development, implementation and ongoing improvement of NJCTS programs.
    • Responsible for strategic planning to ensure that NJCTS can successfully fulfill its mission.
    • Establish and maintain relationships with various organizations on the local, state and national level and utilize these relationships to strategically enhance NJCTS’ mission.
  • Leadership and Management
    • Serves as the organization’s primary spokesperson to the media, elected officials and general public. 
    • Lead, coach, develop and retain high quality staff. 
    • Ensure effective systems to track and measure progress. 
    • Regularly evaluate program components to measure success that can be effectively communicated to the Board, funders, and other constituents.

Skills and Qualifications:

  • Advanced degree  with at least 10 years of senior management experience required.
  • Track record of effectively leading a performance and outcome based non-profit organization and staff.
  • Unwavering commitment to quality programs and data driven program evaluation.
  • Excellence in organizational management with the ability to coach staff; manage and develop high performance teams; set and achieve strategic objectives and effectively manage all financial aspects of the organization.
  • Past success working with a Board of Trustees, with the ability to cultivate existing board member relationships and identify potential candidates for board expansion.
  • Strong organizational abilities including planning, delegating, program development and task facilitation.
  • Well-developed marketing, public relations, and fundraising experience with the ability to engage a wide range of stakeholders including funders and legislators.
  • Budget management skills including budget preparation, analysis, decision-making and reporting.
  • Strong written and verbal communication skills

Compensation and Application Process

Salary range for this position is $125K -140K and is commensurate with experience.  This is a full-time hybrid position based in Somerville, NJ.  Excellent medical, dental, vision benefits and a 401K plan. Paid holiday time off and PTO policy.

Please send a cover letter and resume to Resumes@njcts.org. Please use Executive Director in the subject line.

The NJ Center for Tourette Syndrome and Associated Disorders (NJCTS) is committed to creating a diverse environment and is proud to be an equal opportunity employer. All qualified applicants will receive consideration for employment without regard to race, color, religion, gender, gender identity or expression, sexual orientation, national origin, genetics, disability, age, or veteran status. NJCTS is also committed to compliance with all fair employment practices regarding citizenship and immigration status.


The NJ Center for Tourette Syndrome and Associated Disorders (NJCTS) is committed to creating a diverse environment and is proud to be an equal opportunity employer. All qualified applicants will receive consideration for employment without regard to race, color, religion, gender, gender identity or expression, sexual orientation, national origin, genetics, disability, age, or veteran status. NJCTS is also committed to compliance with all fair employment practices regarding citizenship and immigration status.


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