We met with Congressman Frank LoBiondo (R-NJ2) on November 19 with the New Jersey Center for Tourette Syndrome & Associated Disorders (NJCTS) to discuss TS and the H.R. 3760 federal TS legislation. We are thrilled with how the meeting went!… Continue Reading
I was very sick last week, as was my daughter the week before. For us, it was all about being knocked on our butt for a few days, sniffling like crazy, dealing with a few nights of sore throat because of postnasal… Continue Reading
EDITOR’S NOTE: The following story first appeared on the websites of the New Jersey Center for Tourette Syndrome & Associated Disorders (NJCTS) and the New Brunswick Patch. When it comes to Tourette Syndrome, pediatricians often state that families bypass them and… Continue Reading
My son began having motor tics at age 3 when he had strep. He continued having them with each strep episode and, eventually, when he did not have strep as well. He also had a host of other issues. He… Continue Reading
EDITOR’S NOTE: The following post was entered on our Facebook page the other day. It’s from the leader of an online community called Collectively Conscious, who has Tourette Syndrome and associated disorders such as ADHD. I would just like to share that I,… Continue Reading
EDITOR’S NOTE: The following blog entry originally was submitted on Life’s A Twitch, a website run by Canadian psychologist Dr. B. Duncan McKinley. Question: Our daughter Lil T. had a winter season plagued with numerous head colds and sinus infections. She… Continue Reading
I’m hesitant to type this, for whenever I say, “Tics are looking good!” two minutes later my kid is honking like a seal and spinning like an anorexic mama on a bike at the gym. But so far, the Intuniv doesn’t… Continue Reading
For 6 weeks, I have been driving back and forth to UCLA for a fake pill. The good doctor sat with me in his office and told me, in all seriousness, that there is no way that this pill could have… Continue Reading
Drew Friedrich and Sarah Ethridge had a lot to say at the New Jersey Center for Tourette Syndrome’s patient-centered training April 9 at Goryeb Children’s Hospital in Morristown, N.J. And the pediatric residents to whom they spoke absorbed every word… Continue Reading
In my last post, I talked about my son’s big UCLA Tourette Syndrome follow-up appointment. The doctor took a lot of time with both of us, and the overall consensus was that, yes, Stink has some attention issues. Stink tics mildly… Continue Reading