Welcome to TSParentsOnline, a blog for parents of children with Tourette Syndrome by parents of children with Tourette Syndrome, brought to you by the New Jersey Center for Tourette Syndrome & Associated Disorders (NJCTS).
NJCTS is in the business of providing new and innovative resources for parents of children with TS, a neurological disease that affects as many as 1 in 100 kids — most of them undiagnosed, misdiagnosed and misunderstood.
To help further achieve those goals, NJCTS — which provides answers for these kids and their families through referrals to programs and services, education and training so that families, peers and professionals will be better qualified to help those with TS — launched TSParentsOnline, a place for parents of kids with TS to share ideas, opinions, stories and expertise, as well as connect on ways to support each other.
The blog, which went live on the Internet on Nov. 7, 2011, initially featured parent bloggers from New Jersey, but since has opened to anyone worldwide — either for participation or simply reading.
Those wishing to participate as a contributor to the blog should contact NJCTS’ blog administrator at email@example.com. And please helps us spread the word today about this worthwhile new venture, one that has all of us at NJCTS very excited!
This blog is administered by NJCTS, and NJCTS, its directors and employees assume no responsibility for the accuracy, completeness, objectivity, or usefulness of the information presented on this site. We do not endorse any recommendation or opinion made by any member or physician, nor do we advocate any treatment. You are responsible for your own medical decisions.
Please read our terms of service and disclaimer before continuing on TSParentsOnline.
Using Information on NJCTS
NJCTS provides users an area to discuss TS related information, views, opinions and the recommendation of individuals and organizations.
The terms of service (TOS) are as follows: Conduct yourself generally as you would at a gathering where polite people might attend. Watch your language. Avoid rudeness and flame wars. Stay on topic and stick to posts relevant to TSParentsOnline. Otherwise, behave legally, morally and ethically.
You are completely responsible for your own medical decisions and who and what you believe on TSParentsOnline. TSParentsOnline is designed to help you gain the information edge you need to help you make your own decisions. You are responsible for properly analyzing and verifying any information you choose to rely upon.
NJCTS monitors all posts, messages and comments posted on TSParentsOnline. We do reserve the right to remove any post, message or comments at any time that is in violation of the User Agreement or clearly detracts from the value of the community, without notice.
Messages posted by moderators, highly ranked or long-term members of NJCTS in no way reflect the official views of NJCTS. NJCTS does not control and cannot be held responsible for comments made by individuals who use TSParentsOnline.
Participants should be aware that other participants may not be who they say they are. NJCTS does not perform a background check on any of the participants’ profiles. We do not guarantee that participants’ profiles contain accurate information. Participants should also be aware that other participants may use NJCTS for personal gain. Therefore, everyone should approach messages with appropriate skepticism and objectivity.
Posts, messages and comments posted by individuals may be misleading, deceptive or in error. You may disagree about a topic or issue, but stay objective and do not turn it into a personality battle.
TSParentsOnline largely is a self-policing discussion site, however, NJCTS site administrators will respond and react to e-mails received from members regarding violations of the Terms of Service. Upon receipt of such e-mails, moderators can and may take appropriate action (at their sole discretion), including, but not limited to the removal of post(s) and the suspension or termination of account(s). Chances are – if you’re honest, sincere, and civil with your posts – you will never have to worry about having a post removed.
Acceptance of the User Agreement
We reserve the right to modify, remove, or extend any or all parts of the User Agreement at any time without notice. Your use of the site after the posting of any change to the User Agreement will be considered an acceptance of the change(s).
When initially registering for the site, you must select a user name and password. Each user name will be unique, currently case insensitive. We have the right to refuse granting any user name that impersonates someone else’s or that we feel is not in good taste or is otherwise inappropriate. Choose a good password, not easily guessed by anyone else! We are not responsible for any user impersonation. If you have concerns or feel you are being impersonated, please contact us through the contact link at the bottom of the chat board.
By accepting the User Agreement, you agree to provide accurate registration information in the Registration Page. Failure to maintain an accurate e-mail address may result in your immediate removal from the site. Please keep this updated via your Profile.
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I know a retired gentleman that has Tourette Syndrome his symptoms are a “popping ” of his mouth. Position of the head, neck seem to decrease symptoms somewhat, but only temporally..
I am interested in more information regarding dental devices and tics. My 15 year old son was diagnosised with Tourette’s as a young child and his tic are getting worse. We are looking for any no-pharmaceutical interventions.
My 16 year old son and I both have tourettes. We try not to but we set each other off. We make each others tics worse. Does anybody have any advice to give? I want to be a good parent ,but I make his condition worse.