Last week, my daughters Anna and Sarah gave a TS Youth Ambassador Presentation. Like all of the ones they have given before, I sat in the audience and watched the faces of the kids as they learn about TS. They… Continue Reading
My daughters Sarah and Anna did a New Jersey Center for Tourette Syndrome & Associated Disorders (NJCTS) Youth Advocate Presentation for more than 150 7th-graders last week at Galloway Township Middle School, and to put it bluntly…they killed it. The… Continue Reading
Don’t ever believe that Tourette Syndrome will prevent your child from achieving great things. Last year, I wrote about my son and oldest daughter with Tourette Syndrome. I mentioned that my daughter was diagnosed at age 11 and never asked… Continue Reading
Last year, my daughter took part in the National Tourette Syndrome Youth Ambassador program. We went to Washington, D.C., were my daughter had the opportunity to spend three days with kids from all over the country who had TS. She… Continue Reading
We met with Congressman Frank LoBiondo (R-NJ2) on November 19 with the New Jersey Center for Tourette Syndrome & Associated Disorders (NJCTS) to discuss TS and the H.R. 3760 federal TS legislation. We are thrilled with how the meeting went!… Continue Reading
Hi everyone, I just wanted to share a couple of little notes that show how important it is to support H.R. 3760, the Collaborative Academic Research Efforts for Tourette Syndrome Act of 2011. I posted the following short letter to the POPVOX… Continue Reading
Today, while having a conversation about Tourette Syndrome, my son brought me to tears. As most parents of TS kids can imagine, this was not the first time I have been brought to tears with regards to his TS. I… Continue Reading