Awareness. Acceptance. Action. Advocacy. All needed when it comes to informing people about Tourette Syndrome at the national, regional, state and local level. Our Facebook page (give us a “like”! ) is dedicated toward these very things, especially when it… Continue Reading
Awareness. Acceptance. Action. Advocacy. All needed when it comes to informing people about Tourette Syndrome at the national, regional, state and local level. Our Facebook page (give us a “like”! :) ) is dedicated toward these very things, especially when… Continue Reading
I was overwhelmed by the well-wishes and show of support from fellow parents of kids with TS who wrote on my last blog. In addition, the insight from those before us who have navigated this winding road of psychiatric care… Continue Reading
Hi everyone, I just wanted to share a couple of little notes that show how important it is to support H.R. 146, the Collaborative Academic Research Efforts for Tourette Syndrome Act of 2013. I posted the following short letter to the POPVOX… Continue Reading
Our son, Ethan, turned 12 last week in a residential treatment facility more than 1,000 miles from home. It’s a hospital in Wisconsin specializing in the treatment of kids with tic disorders and debilitating obsessive compulsive disorder, resistant to the… Continue Reading
As a scientist and father of 2 kids with Tourette Syndrome, I’m often pretty frustrated with the state of our understanding of the causes of Tourette and its frequency within the general population, and with the limited treatment options available.… Continue Reading
We met with Congressman Frank LoBiondo (R-NJ2) on November 19 with the New Jersey Center for Tourette Syndrome & Associated Disorders (NJCTS) to discuss TS and the H.R. 3760 federal TS legislation. We are thrilled with how the meeting went!… Continue Reading
Hi everyone, I just wanted to share a couple of little notes that show how important it is to support H.R. 3760, the Collaborative Academic Research Efforts for Tourette Syndrome Act of 2011. I posted the following short letter to the POPVOX… Continue Reading
Hi everyone, I just wanted to share a little note that shows how important it is to support S. 2321, the Collaborative Academic Research Efforts for Tourette Syndrome Act of 2011. I posted the following short letter to the POPVOX website… Continue Reading
Please join TSParentsOnline, the New Jersey Center for Tourette Syndrome, the Tourette Syndrome Association and the hundreds of thousands of Americans with TS in celebrating Tourette Syndrome Awareness Month, May 15 to June 15. Tourette Syndrome is a misdiagnosed, misunderstood neurological… Continue Reading