TS is a clinical diagnosis, meaning that there is not a specific test for the disorder, it has been noted to be difficult to diagnose with research showing delays in the diagnosis of TS (Wand et al., 1992; Freeman et… Continue Reading
Living with neurological disorders can be full of challenges for both children and adults. The good news is that life with these disorders can still be filled with joy and adventure. It just takes some creative thinking and flexibility to get there,… Continue Reading
Now that I’m working full time in social media, I’ve learned a heck of a lot. I will share it with you! I’m not very interested in social media. Sound bites? Twittering? Constantly moving targets that may or may not… Continue Reading
Keeping this short as I’m at work, but had to say that Stink is seeing relief already from one treatment of acupuncture last week. I am so relieved. Energy down, vocals almost gone, still major eye rolling and head shakes/head… Continue Reading
Awareness. Acceptance. Action. Advocacy. All needed when it comes to informing people about Tourette Syndrome at the national, regional, state and local level. Our Facebook page (give us a “like”! ) is dedicated toward these very things, especially when it… Continue Reading
I speak to so many of you worried mamas offline. I was once like you — scared about the future, dreaming of fearful “what-if” scenarios, wondering if my kid jumped up and down in excitement over a surprise Disneyland trip… Continue Reading
Every day, scientists and geneticists are working to find a cure for Tourette Syndrome. What if you could actually be a part of the research taking place that could someday usher a cure into existence? You can! Join the New… Continue Reading
Conditional Corner is a series that runs Fridays on TSParentsOnline. All stories, including this one by Vrinda Pendred, were originally published at Conditional Publications. OK, who watched X-Men 3: The Last Stand and felt like, in many ways, it was… Continue Reading
Our son, Ethan, turned 12 last week in a residential treatment facility more than 1,000 miles from home. It’s a hospital in Wisconsin specializing in the treatment of kids with tic disorders and debilitating obsessive compulsive disorder, resistant to the… Continue Reading
As a scientist and father of 2 kids with Tourette Syndrome, I’m often pretty frustrated with the state of our understanding of the causes of Tourette and its frequency within the general population, and with the limited treatment options available.… Continue Reading