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The experiences of diagnosis in adults with Tourette Syndrome

TS is a clinical diagnosis, meaning that there is not a specific test for the disorder, it has been noted to be difficult to diagnose with research showing delays in the diagnosis of TS (Wand et al., 1992; Freeman et… Continue Reading

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10 Common Tourette’s Questions & Answers, Part 6

Living with neurological disorders can be full of challenges for both children and adults. The good news is that life with these disorders can still be filled with joy and adventure. It just takes some creative thinking and flexibility to get there,… Continue Reading

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Mouthpieces/dental appliances for tics and Tourettes

Now that I’m working full time in social media, I’ve learned a heck of a lot. I will share it with you! I’m not very interested in social media. Sound bites? Twittering? Constantly moving targets that may or may not… Continue Reading

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Acupuncture to the rescue: Tics reduced!

Keeping this short as I’m at work, but had to say that Stink is seeing relief already from one treatment of acupuncture last week. I am so relieved. Energy down, vocals almost gone, still major eye rolling and head shakes/head… Continue Reading

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Tourette research helps families, but we need more of it!

Awareness. Acceptance. Action. Advocacy. All needed when it comes to informing people about Tourette Syndrome at the national, regional, state and local level. Our Facebook page (give us a “like”! ) is dedicated toward these very things, especially when it… Continue Reading

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Replace fear with faith

I speak to so many of you worried mamas offline. I was once like you — scared about the future, dreaming of fearful “what-if” scenarios, wondering if my kid jumped up and down in excitement over a surprise Disneyland trip… Continue Reading

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You can play an important role in advancing research and finding a cure for Tourette Syndrome!

Every day, scientists and geneticists are working to find a cure for Tourette Syndrome. What if you could actually be a part of the research taking place that could someday usher a cure into existence? You can! Join the New… Continue Reading

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Conditional Corner: We are all neuroatypical X-Men

Conditional Corner is a series that runs Fridays on TSParentsOnline. All stories, including this one by Vrinda Pendred, were originally published at Conditional Publications. OK, who watched X-Men 3: The Last Stand and felt like, in many ways, it was… Continue Reading

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Don’t let a great opportunity pass us all by

Our son, Ethan, turned 12 last week in a residential treatment facility more than 1,000 miles from home.  It’s a hospital in Wisconsin specializing in the treatment of kids with tic disorders and debilitating obsessive compulsive disorder, resistant to the… Continue Reading

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Support HR 146 — proposed Tourette Syndrome legislation!!!

As a scientist and father of 2 kids with Tourette Syndrome, I’m often pretty frustrated with the state of our understanding of the causes of Tourette and its frequency within the general population, and with the limited treatment options available.… Continue Reading