We met with Congressman Frank LoBiondo (R-NJ2) on November 19 with the New Jersey Center for Tourette Syndrome & Associated Disorders (NJCTS) to discuss TS and the H.R. 3760 federal TS legislation. We are thrilled with how the meeting went!… Continue Reading
Hi everyone, I just wanted to share a couple of little notes that show how important it is to support H.R. 3760, the Collaborative Academic Research Efforts for Tourette Syndrome Act of 2011. I posted the following short letter to the POPVOX… Continue Reading
Today, while having a conversation about Tourette Syndrome, my son brought me to tears. As most parents of TS kids can imagine, this was not the first time I have been brought to tears with regards to his TS. I… Continue Reading
Thanks so much to the NJCTS community for the invitation to guest blog. As I mentioned on my Tumblr page last week, I was very impressed by your organization’s advocacy efforts around H.R. 3760. The press release praising Congressman Rush Holt… Continue Reading
Hi everyone, I just wanted to share a little note that shows how important it is to support H.R. 3760, the Collaborative Academic Research Efforts for Tourette Syndrome Act of 2011. I posted the following short letter to the POPVOX website… Continue Reading
Since it was introduced by U.S. Congressman Albio Sires (D-NJ13) on Dec. 20, 2011, bill H.R. 3760 — the Collaborative Academic Research Efforts for Tourette Syndrome Act of 2011 — has gained a lot of national attention. It now has 36… Continue Reading
As a father of two children with TS, I am reaching out to other parents of children with TS to help support a first-of-its kind legislation that would amend the Public Health Service Act to provide for the expansion, intensification… Continue Reading