2016 NJCTS Youth Scholarship Award Essay: “Living with Tourette Syndrome”

This is the essay I submitted to the NJ Center for Tourette Syndrome & Associated Disorders (NJCTS) for their 2016 Youth Scholarship Award contest. I hope you enjoy it!

MichaelS

MichaelS

I pondered what it meant when I was diagnosed with Tourettes. The doctor explained to me there was no cure, and that with time it’d get better, but he said Tourettes will be a part of my life forever. I had finally figured out the answer as to why I constantly rolled my eyes, or why I occasionally let out an obnoxious vocal sound. As a confused 4th grader, I didn’t realize this would soon become part of my identity. After the diagnosis I was uneasy about telling people, even my close friends, why I did all these strange things. I was scared they’d think of me differently or put a label on me. Every time my classmates asked about it, I’d reply with an indifferent “I don’t know.”

I remember showing up to a basketball camp and as we were huddled around a coach, he was lecturing us. My eyes rolled uncontrollably. He stood up and then scolded me, talking about how disrespectful I was and I was forced to run to the point where I felt like I had to throw up. I was too frightened to tell him it was because of Tourettes. After that fiasco, I realized it was time to tell people.

It took me 3 years to finally muster up the courage to tell a couple of my close friends why I had been rolling my eyes, crinkling my nose, and letting out vocal sounds. I explained to them that they were called tics that unfortunately forced me to do some strange things. I told them I couldn’t suppress these tics or else I would feel like I couldn’t breathe. I was nervous as to how they would react. I didn’t want them to think of me differently. They all essentially said the same thing: “It doesn’t matter; you’re not different; you having Tourettes doesn’t change anything.” I was shocked. I thought I’d receive some questions, but everything was alright.

Sure there were instances throughout my life where people asked questions and said mean things. Soon I realized that having Tourettes was a blessing in disguise: I was able to talk to people and educate them on Tourettes. I was trying to eliminate the stereotype that all people with Tourettes curse excessively or are constantly mumbling random words. After telling people about my neurological disorder I became cognizant of that fact that this was me, I couldn’t change it even if I wanted to.

As I got older, more and more people began to put a face to Tourettes and it was mine. I was uncomfortable with this at first, but it was a component of who I am; I’m not complete without Tourettes. People were able to see that anyone can have Tourettes and that sometimes we may not even know they do. Without Tourettes I feel like I’d be a different person, maybe a little more normal, but “normal” can be boring. Tourettes is a part of who I am: it’s an essential part of my identity. As I grow up, I realize it will forever be a part of me: maybe a small part, but a part nonetheless.

 

2016 NJCTS Youth Scholarship Award Essay

This is the essay I submitted to the NJ Center for Tourette Syndrome & Associated Disorders (NJCTS) for their 2016 Youth Scholarship Award contest. I hope you enjoy it!

I have had TS all my life, and it has affected me all my life, even though I may not have known what it was until more recent years. Knowing that I have Tourette Syndrome gave me a sense of identity, and a group of people to belong to. More importantly, it gave me direction and even more reason to create. I have always prided myself in being an artist, in particular a photographer. Being diagnosed with TS has given me a need to create and provide good representation for those with TS. I feel as if I need to prove to the world that I’m not some crude video on YouTube for people to laugh at, I am a remarkable human being that can create something beautiful out of anything. Having Tourette Syndrome has its good days and its bad days, and even on those bad days I can be reminded to keep on going and keep on ticking because TS makes me, me. I am the most important thing I could ever have. Tourette Syndrome showed me that while things can be uncontrollable, wild, and unpredictable, there is always a place for you to belong. TS has taught me that you have to be willing to go with the flow, and that not everything has a reason, which I believe that is one of the most valuable things you can learn going into adulthood. Accepting things as they are will always be a benefit to you, especially with something like Tourette Syndrome.

2016 NJCTS Youth Scholarship Award Essay: “Living with Tourettes”

This is the essay I submitted to the NJ Center for Tourette Syndrome & Associated Disorders (NJCTS) for their 2016 Youth Scholarship Award contest. I hope you enjoy it!

EricR

EricR

I was diagnosed with Tourette’s Syndrome at the age often. My tics were much worse when I was younger, but have started to dissipate as I have grown. The diagnosis of Tourette’s is central to my identity and matters a great deal, as it has shaped who I am and how I interact with the world.

Having Tourette’s does not define me, however, it was a pivotal player in the shaping of my early years. I started showing symptoms around the age of six. The first observable tics included humming and blinking. My family had no idea what was happening, so they took me to see multiple doctors. At first the doctors said that I had transient tics. They could not make the diagnosis of Tourette’s until I displayed both motor and vocal tics consistently for over a year. This was a problem because my tics would change constantly. I could have one or a combination of multiple tics occur simultaneously and then they would suddenly disappear for months at a time. This occurred for a number of years. Therefore, it wasn’t until the age often, that a doctor officially made the diagnosis.

Tourette’s has come to shape my personal identity in different ways over the years. I have had to learn how to deal with it every day of my life, since elementary school. When I was younger, my tics were at their worst, so I had to focus more on controlling them than on the lessons being taught at school. As a result, my parents often had to re-teach the lessons to me, and at times I also needed tutoring. Once I became a teenager my vocal tics were the most noticeable and disruptive. Fortunately, my teachers and classmates were compassionate and understanding. They knew that I had Tourette’s and that I wasn’t making strange noises on purpose. It was during this time that various medications were attempted, but they only made my tics worse and gave me bad side effects. Despite the downside of distracting me from my early education, many positive things have come out of my condition.

Having Tourette’s Syndrome has allowed me to understand myself on a deeper level. I have become more confident as I grow and adapt to my disorder. Because of the confidence I have acquired, I am a more focused and dedicated student.

As a result of this dedication, I have been on the honor roll every year since entering middle school. I also hold memberships in both the St. Thomas Aquinas Honor Society and the National Honor Society of High School Scholars. During my sophomore and junior years, I received several Outstanding Academic Achievement Awards. In addition, I have been recognized as a member of the Sapientia Sanctitas Society.

My success did not come easy. Many hours of studying and tutoring occurred throughout my elementary and high school years. I knew that if I wanted to succeed, I would need to focus and concentrate on doing well. My determination and perseverance paid off, as I have been accepted into three colleges to study architecture.

Experiencing challenges at an early age caused me to have a unique and positive perspective of the world. I see the world in a different way. I am not quick to judge other people, as I understand what it feels like to be looked at oddly. When I was younger, I used to be very introverted. Now that I am older and my tics are more manageable, I have become more extroverted. I am no longer afraid of what others will think of me and I now welcome new challenges.

Tourette’s has helped shape my personal identity as it has exposed me to diverse and challenging situations. I have become less introverted and have formed a positive opinion of the world around me because of the confidence I have gained from adapting to my disability. I look forward to experiencing new challenges and more opportunities for growth, as I continue my education as an architecture student.

2016 NJCTS Youth Scholarship Award Essay: “Me, Myself and Tourettes”

This is the essay I submitted to the NJ Center for Tourette Syndrome & Associated Disorders (NJCTS) for their 2016 Youth Scholarship Award contest. I hope you enjoy it!

SebastianL

SebastianL

Imagine telling a child with the hiccups to stop making sounds. That child will try his hardest to keep it inside of him, but it gets to a point where your body stops listening to your mind. He doesn’t want to have the hiccups, but it JUST WON’T GO AWAY. That’s exactly what it’s like to have Tourettes Syndrome, except you’re stuck with it for a much longer time.

My parents first noticed subtle things that weren’t really that odd, but I just kept doing over and over again at around the age of six. Every time we ate, I had to have had my fork and knife perfectly aligned with the napkin.

Not really that weird, but to the point where it became annoying since I did it everywhere, not just at home. But once I entered elementary school, things became a little more difficult for me. I couldn’t stop shifting around in my seat and I couldn’t stop moving my long hair out of my face. I became a common target for yelling at because while everyone was sitting doing work, I was sitting on my knees and tapping my pencil. My parents thought they were going to be stuck with a troublesome kid, but it wasn’t quite that.

One day at school, my surfer-dude type haircut was really getting on my nerves. Strands of hair were in front of my eye and I felt as if my sense of touch was off the charts because it felt like I could feel every single piece of hair bother me. So, I got my safety scissors out of my pencil case and gave myself a new haircut. From that day on, I didn’t have bangs that would bother me at school. However, when I got off the bus that day, my mother wasn’t too happy to see a twenty dollar haircut go to waste like that. I explained what happened and it was around this time my mom began to think that these weren’t really traits of a so-called troublemaker kid. So we went to a doctor and they told me I had “nervous tics.” I went along with it, because why would I argue with a doctor right. So from then on, I assumed that I was just some nervous kid for no reason.

Time went on and I entered the middle school where everybody was grown up and cool. By this time, I’ve had a track record of being “that” kid and I just accepted the status I was given and tried to run with it. But this is when my “tics” started to evolve into what is actually known as Tourette’s. I started making noises and making noticeable repetitive movements. One day during math class, my favorite period of the day (sarcasm), I was feeling rather anxious. I made a high pitched noise, kind of like when a girl sees a spider and yells “EEK!” Some heads turned but I just played it off like I always have whenever I did something weird. While the teacher was going on with her lesson, I felt this extreme tension in my throat. This is when I compare it to hiccups, because once it starts, you can’t stop it. I tried really hard to “hold it in” but it just hopped out. Heads turned once more and the teacher gave me a warning, telling me to stop interrupting the class. About a minute later, something in me decided to bother the class once more and I let out another “EEK” like noise. My teacher had enough of my shenanigans by then and yelled at me in front of the whole class and told me to go to the office. I walked out with my head low, confused and sad because I wasn’t able to understand why I was doing these things. I wasn’t nervous at all and I’ve never done something that outward. The principal told me to stop being a bother to people and I tried to be as quiet as possible the remainder of the day. When I got home, all the sadness I was holding in just exploded into tears when my mom asked me how my day was. I explained to her what happened and we went to the doctor once more. They spoke with my mom and told her we should go get an MRI of my very nice brain. They did a bunch of stuff I didn’t get and when we left she hit me with the “nervous tics” phrase again. I’m convinced that she knew it was Tourettes but she didn’t tell me because she didn’t want me to feel bad.

Fast forward and I’ve had plenty of time to learn how to hold in my “tics” while at school and public places and to allow them to come out at home. It’s freshman year in high school and by now I’ve figured out for myself that what I have was probably Tourettes. I asked my mom if we could get some medicine to ease them a little bit but that just made me feel sick all the time. So we went to another doctor who asked my morn if he could talk to me in private, so I could speak honestly about my Tourette’s. He and I spoke about what was going on with me and we had a genuine down to earth conversation. He told me about his friend, who happened to have Tourettes, who also happened to be a heart surgeon. That heart surgeon had the same repetitive noises and movements like I did, but whenever he was going into an operation he became as still as a statue. His whole psyche changed and he was able to do amazing things and save people’s lives. My doctor told me I didn’t need medicine, that the power to control my Tourettes was in me and I just had to hone it like his friend did. I walked away from that visit with a new sense of hope and pride. From that day on, I never let my Tourettes get the better of me and I aimed to make the best me possible. And I’ve never abandoned that mentality to this day.

Despite all the negative things that I was forced to go through, at the end of the day, it made me stronger and I was able to push myself harder than anyone else. Instead of resenting the people who made fun of me, I accepted them and grew to understand why people acted the way they did. With all the time I kept to myself, I thought about things that a child in middle school wouldn’t normally think of, the world, humanity and myself as a person. I also continued to read a lot and it became relatively easy for me to excel in school, always meeting honors. I believe I grew wise beyond my years and rapidly became a person with a wonderful perspective. My Tourette’s created a teen with more love, acceptance, and knowledge than those around me and I am proud of that. And if having Tourette’s was the only way that that could happen, I wouldn’t give it up.

2016 NJCTS Youth Scholarship Award Essay: “Visible”

This is the essay I submitted to the NJ Center for Tourette Syndrome & Associated Disorders (NJCTS) for their 2016 Youth Scholarship Award contest. I hope you enjoy it!

NoelleG

NoelleG

My parents always wondered why I could not stop sniffling. I did not have any other symptoms of a cold, and my sniffling was continuous, far longer than a cold would have lasted. I was prescribed a nasal steroid spray. The doctor thought I had allergies. As it turned out, my sniffling was not a result of allergies but was rather one of my earliest identified tics. I have Tourette Syndrome. My mother noticed my odd, seemingly involuntary movements and brought me to a neurologist. I was diagnosed with Tourette Syndrome, and we realized that my sniffling was actually a tic. As the years have gone by I have expressed a multitude of different tics, most of which were motor tics. I had a few minor vocal ones dispersed within the rest, but as a whole my tics are motor tics.

When I was young I was a walking paradox. I adored attention and loved being in front of people, but at the same time I was dreadfully shy when it came to people I did not know very well. I would dance in the school talent show and not sweat it but I could not hold a conversation with another fourth grader for the life of me. This weird mix of feelings made having Tourette’s very difficult. I loved having people look at me, but when people looked at me because of how my face moved on its own accord I felt uncomfortable. It felt like the wrong kind of attention. I already struggled to fit in because of my inherent social anxiety and lack of friends, so feeling like something was fundamentally wrong with me made my social life and self-esteem pretty pathetic. I could not even control my own body. How was I supposed to blend in? Kids at church made fun of me for my tics. They imitated them and counted how many times I would tic per minute. It was a fun game for them, but I cannot describe how anxious and hurt it made me feel.

As happens to many children, my tics have subsided a bit with age. In fact, most people

in my new town do not even realize I have Tourette Syndrome. The tics are most visible when I am anxious, and they are far more manageable. I do not find myself frequently sporting sore muscles and joints as a result of ticking anymore. The tics still exist, but they are less frequent and less exhausting. I am pursuing acting as a profession. I am glad that I have grown to accept my condition for what it is. I have selected a career path that I am passionate about, and it happens to be a career which is very visible. People will be watching me, whether I am on stage or on screen or in an audition room. Yes, I have Tourette’s. Yes, I do have involuntary motor tics. But they do not significantly distract from the artistry of what I am performing. And they have shaped me into who I am. Would I be the same person if two boys did not count each tic for minutes on end? I probably would not. I am incredibly conscious of other people’s insecurities and disabilities. Would I be the same person writing this today had I not overheard the other cheerleaders whispering to each other about the weird throat-clearing noise I made? No, I would not. I make it a point not to talk about people like that. Would I be the same person if I did not have a peer ask me “What’s wrong with your face?” No.

Having Tourette Syndrome has afforded me skills and life lessons which are unique to the condition. I am coping with it every day, and I am succeeding. I no longer mind when people look at me. I am strong and can even explain what is happening if they would like. I have Tourette’ s. And it is visible. But it’s me.

2016 NJCTS Youth Scholarship Award Essay: “My Life with Tourette Syndrome”

This is the essay I submitted to the NJ Center for Tourette Syndrome & Associated Disorders (NJCTS) for their 2016 Youth Scholarship Award contest. I hope you enjoy it!

Having Tourette Syndrome has impacted my life in so many ways. It has influenced the choices I’ve made and the people I’ve met. My experience with Tourette’s has helped shape me into the person I am today. I’m not ashamed of my Tourette’s (in fact, I’m almost proud of it), and I feel that it has helped make me a better person.

I was diagnosed with Tourette Syndrome in the fifth grade, at the age of ten. I’ve suffered from vocal and motor tics since I was in the second grade. Neither I nor my parents understood what caused them, and my teachers and other students would often become frustrated with me. Even my own family would grow tired of my constant noise-making and movements. I didn’t know what was wrong with me. Eventually, someone told my mother to look into Tourette Syndrome. I was finally diagnosed with Tourette’s in the fall of 2008.

Instead of letting my Tourette’s drag me down, I used my diagnosis as motivation to better myself. I began taking karate lessons later the same year after my diagnosis. In eighth grade, I decided to play football. It was a rough season, but it ended up being one of the best decisions I’ve ever made. Football gave me an outlet in which to channel my frustration. I was never a great athlete, but I worked hard, so by my senior year, I had earned a starting varsity spot on my high school’s football team.

In my junior year, I participated in a research study for a new Tourette’s medication. This was done at Overlook Hospital, in Summit, New Jersey, under the supervision of Dr. Roger Kurlan. The medicine worked well for me. I greatly enjoyed the opportunity to be able to possibly help others with Tourette’s.

In conclusion, Tourette Syndrome is a part of my life. My experiences with Tourette’s have greatly contributed to the person that I am today. I’m not ashamed of my Tourette’s, instead I embrace it as part of who I am. I have never let my Tourette’s drag me down, and I hope to inspire others with Tourette’s to embrace it and use it as motivation to better themselves as well.

2016 NJCTS Youth Scholarship Award Essay: “A Journey with Tourette Syndrome”

This is the essay I submitted to the NJ Center for Tourette Syndrome & Associated Disorders (NJCTS) for their 2016 Youth Scholarship Award contest. I hope you enjoy it!

JordanT

JordanT

Tourette Syndrome has played a significant role in my life ever since I was diagnosed in fifth grade. Initially, it did not pose much of a threat for me. I was still able to focus during school, which allowed me to continue my education and learning. I was grateful for that phenomenon, but it did not come without a caveat. Even though my facial tics were not very severe, I still developed a shyness and self-consciousness because of them. However, I was surrounded by a group of kind and accepting friends, which greatly alleviated my anxiety.

I was able to prosper throughout middle school with the support of my friends and family, but high school was a much different story. I am currently attending the Academy for Information Technology, a prestigious school dedicated to teaching students about the vast possibilities of business, information technology, and computer science. Unfortunately, I was the only student from my middle school who enrolled that year, so I was in a completely new environment. I was terrified at first, but I was able to overcome my fears and make new friends, just as friendly as the ones I had in middle school. The course work was much tougher than in middle school, but I was able to succeed in my academic endeavors. My facial tics were under control as well, so all was well in life.

My senior year of high school was a major turning point for me and my Tourette Syndrome. At the start of the year, I felt an immense weight on my shoulders because of all the new responsibilities I had to assume. With more demanding school work, the college application process, and my extracurricular activities, I felt swarmed with an enormous amount of pressure. And with the additional stress, the frequency of my facial tics skyrocketed. The first few weeks were probably the worst. During class and at home, I could barely keep my eyes open. Not because of a lack of sleep, but from incessant blinking, one of my most prominent facial tics. The warm summer weather only aggravated my symptoms. My self-consciousness also reemerged, as I was afraid people might start noticing my facial tics. I felt like I was hopeless, but I resolved to overcome this obstacle.

Senior year marked a new precedent for my Tourette Syndrome, but I gained a valuable trait from my facial tics as well. My tics were starting to impede my focus, so I knew I had to something or else my learning would suffer. One day after school, I went into deep contemplation and emerged with a strategy for alleviating my troubles. I realized my Tourette Syndrome was a medical condition, so I would not be able to just make it go away. Instead of trying to arduously suppress my facial tics, I decided to embrace my tics as a definitive part of me. Whenever I felt a sudden wave of facial tics about to occur, I would just let it wash over me and run its course. With this method of coping, I was able to maintain my focus and composure while doing my school work. It took some practice, but after a few weeks, I was back on track for success. My facial tics now seemed like involuntary actions, just like breathing or walking. With my new training, I acquired the virtue of patience, which has paid off time and again in school and life. I was confident in myself once again with inspired passion that I could overcome such an obstacle. Instead of seeing Tourette Syndrome as an adversary, I can now see it as a motivator to help me continually improve myself throughout life.

2016 NJCTS Youth Scholarship Award Essay: “Thank you, Tourette’s”

This is the essay I submitted to the NJ Center for Tourette Syndrome & Associated Disorders (NJCTS) for their 2016 Youth Scholarship Award contest. I hope you enjoy it!

SeanK

SeanK

The piercing frequency of my alarm clock shattered the barrier between an unconscious dream of mine and the cruel reality of Monday morning. With eyes half open and hair protruding in all directions, I made my way to the shower. As I flicked the light switch on in the bathroom, I stared at the mirror long enough to witness myself clench my left arm, throw my right arm to my side, and make a faint noise in my throat. Following these tics, I exposed to my mirror a gigantic smile; today was going to be a good day.

I have Tourette’s, and although it’s contrary to the above paragraph, I didn’t always embrace my tics. Learning to live with, accept, and at times even love my Tourette’s was a long, hard journey. I wouldn’t say I was ever depressed, though I was often frustrated. Not only was I dealing with the physical effects of Tourette’s, but also the psychological aspect. Any time I twitched, clenched my jaw, or made any faint noise in my throat, I felt anything but normal. Though the truth was that I was a teenager and with this title came normal teenager worries such as insecurity. Whenever someone asked me why I continuously did some movement with my body, I’d make up some stupid excuse then quickly change the subject. Though, it wasn’t until the summer of my junior year that everything changed for the better.

As the school year ended and summer got closer, I started to prepare my trek to Hardwick New Jersey where my friends and I decided to kick off our summer by volunteering as camp counselors at a Muscular Dystrophy Camp. The format of the camp is that each volunteer gets assigned a kid diagnosed with some form of muscular dystrophy, and we spend the week doing everything in our power to make it the best week of their lives. My camper’s name was Ethan, and although he was a little shy at first, we left the camp best of friends and even keep in touch to this day. From the beginning of camp, I sensed that Ethan’s muscular dystrophy, much like my Tourette’s, had him dealing with psychological effects. I did all I could to make him feel like he could talk to me about anything; that I would hear him out and be there for him.

One particular day Ethan was feeling especially frustrated due to the amount of medicine he had to take at breakfast and I immediately sensed this. After about ten minutes of silence, I said “Man I hate taking medicine everyday it’s so annoying.” I saw Ethan’s head perk up, and we had one of the most moving talks I’ve ever been a part of. I told Ethan about my Tourette’s and how everyone has something in their life that they struggle with; I told him it’s what makes us unique. I told him to never be ashamed of what makes you different because the toughest battles are given to the strongest soldiers. I didn’t know where my words were coming from, but I knew they were helping and that they were true. I didn’t sleep much that night, but rather stayed awake all night thinking about what I had said. I realized how much I needed to take my own advice, and vowed from that night on that I would no longer hide my insecurities but rather embrace them.

It was the camp that catalyzed this realization, but it was my Tourette’s that was trying to teach me this lesson all along. So, how has Tourette’s played a part in my life? It’s made me realize that it’s ok to be different and that instead of hiding our insecurities we should embrace them as things that make us wonderfully unique. Everyone has their insecurities, but the way that I now see it is that we can either let them rule our lives or we can embrace them and learn to love ourselves. Although it might sound odd, I am forever grateful for my Tourette’s; it has taught me to love and accept myself for who I am, and this lesson is priceless.

Hillsdale Teen Inspires his Community to Tackle Tourette Syndrome

NJCTS Youth Advocate Mike Hayden and T3 co-organizer Meghan McIntyre welcome NJCTS Education Outreach Coordinator Gina Maria Jones at the Teens Tackle Tourette's walk on May 22, 2016.

NJCTS Youth Advocate Mike Hayden and T3 co-organizer Meghan McIntyre welcome NJCTS Education Outreach Coordinator Gina Maria Jones at the Teens Tackle Tourette’s walk.

Mike Hayden is taking his Tourette Syndrome advocacy efforts to the next level.

Tourette Syndrome (TS) is a neurological disorder characterized by involuntary movements or sounds known as tics and is frequently accompanied by other neurological or mental health disorders. 1 in 100 school-age children lives with TS and many report feelings of isolation and have been bullied because of their disorder.

Hayden, now 16-years-old, was diagnosed with TS in fourth grade although he started showing symptoms in kindergarten. In 2012, he decided that he wasn’t going to let his diagnosis hold him back so he stepped up to become a Youth Advocate for the NJ Center for Tourette Syndrome and Associated Disorders, Inc. (NJCTS).

NJCTS Youth Advocates lead presentations about TS in schools and community groups to raise awareness, promote understanding and tolerance, and deliver a strong anti-bullying message. They also present with NJCTS-partner doctors at hospitals to educate medical professionals about TS.

When it was time for Hayden’s honors English class at Pascack Valley High School to choose an issue to which to bring attention for their final project, Hayden shared his personal journey with TS and the class was instantly inspired. They organized the group “Teens Tackle Tourette’s” and spent the school year organizing, promoting, and producing a fundraising walk.

“It was an incredible feeling to know that my class truly cared about this cause,” said Hayden. “They knew it was close to my heart and I had many people tell me that there was no question in their mind that this is the cause they wanted to support. It is amazing that they would support me in raising awareness for this issue that many people are incorrectly educated on.”

Hayden recalled that when his family needed help after he received his TS diagnosis they called NJCTS for education and support. To better educate his classmates, he decided to partner with NJCTS Education Outreach Coordinator Gina Maria Jones and Executive Director Faith Rice for a series of in-class presentations about Tourette Syndrome and associated disorders.

“I figured that if we were going to learn about TS, we might as well get the experts in to help teach us,” said Hayden on reaching out to NJCTS for guidance. “I have had many years of experience with NJCTS, so I know that they are truly the best of the best when it comes to education and outreach.”

The Teens Tackle Tourette’s T3 walk took place on May 22 at the Pascack Valley High School Campus and raised more than $1,120 which was donated to NJCTS. During the walk, there were several guest speakers as well as food, games, and giveaways.

“NJCTS is proud to work with young people who take the initiative to raise awareness,” said Education Outreach Coordinator Gina Maria Jones. “It is because of Youth Advocates like Mike that our Youth Development programs are so successful and we hope that all kids living with TS will follow in his footsteps.”

Soon after hosting the Teens Tackle Tourette’s walk, Hayden led a Youth Advocate presentation to 150 fifth graders at Fairmount School in Hackensack on May 24 and delivered the keynote address at the Dare to Dream Student Leadership Conference at William Paterson University in Wayne, NJ on May 25.

“Youth Advocates like Mike Hayden live out the mission of NJCTS and advance public perception, understanding and acceptance of people with TS and associated disorders,” said NJCTS Executive Director Faith Rice. “We are so proud of everything Mike has accomplished.

BRTV Morning Show interviews Girl Scouts about their efforts to raise awareness of TS

Ilina, Jaclyn, and Cami from Girl Scout Troop 60808 were interviewed by the Bridgewater Raritan High School’s morning news show about their effort to raise awareness for Tourette Syndrome. They want everyone to wear blue on Friday in recognition of Tourette Syndrome Awareness Day in New Jersey on June 4th. Way to go, girls!