For me, living with Tourette Syndrome (TS) has been one of those life-shaping experiences. It has not always been easy, but it’s pushed me to grow, speak up, and discover a version of myself I didn’t know existed.
It is and should be the goal of everyone with Tourette’s to be comfortable in their own shoes. It is not required to share it with others around you, but it would ease some of the stress or anxiety that comes with the disorder. Continue Reading
By Peter Frantz Pendell I am Peter Frantz Pendell, a youth advocate and the New Jersey Center for Tourette Syndrome’s Youth Council Co-Leader. This is my first year with the organization, and I have loved every minute. Over time, I… Continue Reading
As my pain got worse and worse, I was struggling to continue with my passion. My teacher left the school and so did I, but I continued to seek out theatrical experience. It was the one place where I felt like I was appreciated for who I am, diagnosis and all. Continue Reading
Seeing teenagers and even adults faking Tourette Syndrome online is an exhausting experience as someone with diagnosed TS. Continue Reading
We welcome you to join the NJCTS Youth Council The purpose of the NJCTS Youth Advocate Council is to empower youth (ages 13-18) living with TS, tic disorders and the associated conditions, or some form of lived experience with TS,… Continue Reading
NJCTS is looking for youth ages 13-17 to participate in the Youth Advocate Presenter Program. As a presenter, our youth have the unique opportunity to share their powerful voices with a variety of audiences including younger students, teachers, new doctors,… Continue Reading
It’s not a joke. It’s not a punchline. It’s not an excuse. Those are the refrains from four Youth Advocates who live with Tourette Syndrome, a neurobiological disorder characterized by uncontrollable movements or vocalizations known as tics. The disorder is… Continue Reading