Free range me

Well, my kid made it to Arizona safely. Shockingly enough, I didn’t spend the entire vacation without him in an anxious mess. Sure, I breathed a sigh of relief when I knew his plane landed safely, but that was about it. The few days without Stink included lots of cherished time with Pip and her dad.

We all stayed up late a few times, curled up on the green couches with books akin to those fat fluffy seals sunning themselves on rocks at the pier. (I’m currently reading Anne Lammot’s Grace, Eventually and just laughing out loud. That woman is brilliant and about as neurotic as I am. Though I have better hair. Sorry, Anne.)

The day after he left, I had tea with Tuskany. While Pip and her daughter swapped books in the next room, Tuskany quipped that I had some free-range parent characteristics. I had to laugh, because in many ways, she’s not wrong. I didn’t check Stink’s luggage. (For all I know, he could have loaded up that suitcase with Twizzlers, pens and porn.)

I didn’t even know who is parent chaperone was until I arrived at the airport that morning, groggy and disheveled from lack of coffee and sleep. In stealing kisses from my man-child and reminding him to brush his teeth at least once on the three-day trip, I forgot to ask for the chaperone’s phone number. I reckoned to myself that if he needed to get in touch with me, he could take my advice and ask another parent to use their phone.

I’m not sure how you would handle this. I do know that Tuskany would never operate in such a manner. She is truly one of the best parents I know. She has this responsible thing down pat, and her daughter, well, she’s a genius. Even Stink thinks so. (After Disneyland a few weeks back, he turned to me and said, “Mom, Nadia is the smartest girl I ever met. And she’s only in THIRD grade. Um… I think she’s smarter than me!” To which I responded, “She is smarter than you, kid!”).

I’m certain that this wunder girl’s mother would not only be sure that her daughter had her own phone, she would not be on a plane with a bunch of rag-tag public school kids going on an excavation. (I’d tell you the places they went, but I lost the itinerary before we even got to the airport. Something with rocks and deserts and Indian caves with the name Canyon tied onto the end for the tourists.)

The thing is, though, I just knew he’d be fine. He was surrounded by teachers and parents. (Some of the parents I even had cell phone numbers for and they sent me pics!) I just didn’t worry about it. Here’s one from someone who, thank God, was kind enough to show me how much Stink was enjoying the culture on Day 1.

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The Tics are Completely, 100% Gone…

…because Stink is on a trip. Yes, my big 6th-grader got on a plane yesterday with his class to hike the grand canyon and go on an archaeological dig. Not a bad scenario for a public school, eh? The most exploring I ever did in 6th grade was to go from one window of paned glass to the next for Stations of the Cross in our Catholic church. I’m thinking Stink is going to have a lot more fun.

Update on Tics

In case any of you are irritated at my false proclamation in the title, I will give you some hope that his tics have been dramatically reduced regardless of the Taurine being eliminated. I believe that the magnesium citrate and the NAC are our miracle workers. Frankly, I think it’s mostly the magnesium and not the NAC but I’m not willing to take that chance right now. I’ll do a supplement post next, but for now, I just want to talk about my 12-year-old. Why? Because he’s 12. And it is going by so fast. As I said in my post for my publishing company, Armonia, I only have 5 Christmases left with this kid.

That’s astounding. How many times have complained to him, “Put away your Wii system when you’re done with it?”

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“Really? Do I have to remind you again that the table is for eating, not for your gaming obsessions?”

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“Um, the chargers and the homework and the key chains and the Disney pins… can you please put them away?”

school shit

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The dangers of Taurine on kids

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After speaking to a nutritionist today, I have decided to take Stink off the Taurine. Despite how well he is doing tic wise (see previous post) I was advised it can be very bad for kids. It acts as a stimulate and can greatly damage the heart. That scared me.

What is Taurine?

Taurine is an amino acid sold in supplements and available in energy drinks. Taurine also occurs naturally in the body and plays a key role in many biological processes, such as detoxification and regulation of nerve-cell activity. Although low levels of taurine have been linked to several conditions (including eye diseases and cardiovascular problems), research on the health benefits of taurine supplements is limited.

Taking Stink off Taurine Slowly

Rather than quit cold turkey, I’m going to take him down to one pill/day for a week, then every other day for a week, then one, then none.

Always Check with a Professional Before Using Supplements

Normally I don’t willy nilly medicate my kids, but I had read on many mom forums that Taurine was this miracle supplement and went for it. I won’t be doing that again.

For those who are praying type, I am asking for prayers that his tics continue to stay minimal and that the NAC and Magnesium Citrate were what was helping him and not the Taurine.

Here’s one supporting article on the dangers of Taurine for kids.

Until next time…

May God grant you the serenity to accept the tics you cannot change, change the tics you can, and have the wisdom to know the difference.

Follow me on Facebook and Twitter. I would love to connect with you. 

HolisTIC: Magnesium Citrate and Taurine

This post is dedicated to Veronica, who was sweet enough to write me a little note asking me where the heck I have been. She misses me! Hooray! I have missed this site, too. To be honest, I have been kind of a whirling dervish of house work, kids, trying to figure out employment, getting a new job, quitting because my boss was an 84-year old maniac who couldn’t stop screaming about my subject lines “Horseshxt! Superfulous Horsehixt!”, fretting over finances, attempting not to fret over finances and ultimately deciding that my priority for now is to be as present with my kids as possible given that we have a four-month summer coming up.

Yes, let me say that again. FOUR MONTHS.

Here is how I feel about that concept.

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Just kidding. It’s more like this.

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But that’s okay. I am going to make the most of it. I have finally decided to make my income by concentrating full-time on Ebay and freelance writing. Sounds like a weird mix, but it works.

Writing Clients

Blogging for a surrogacy company – GlobalIVF

Bloggin for a prescription discount company – SimpleRX

Ebay

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Here’s my store. I am figuring out the most efficient ways to list, sell and ship my items. The ultimate goal is less thrift store items and more New with Tag items purchased downtown. I figure if I buy the same item in bulk, I only have to list it once rather than taking a gazillion photos/day. Other than filling orders, I can spend my time taking care of my wee ones and working on my book marketing which leads me to my final two points:

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Kane is a TS superhero!

This is Kane! Kane is 10 years old from Murray Iowa. Kane is a loving child who enjoys helping other people! Kane and I have had quite the journey together! I was only 18 when I gave birth to this amazing young man! God blessed me with such an amazing son!

He was diagnosed with Tourette when he was 7 years old, after we noticed he was making movements and noises that were out of his control. He has vocal and muscular tics. Kane also lives with OCD, generalized anxiety, social anxiety and Impulse control disorder. Fortunately we live in a small town filled with supporters! Kane has a wonderful small class at Murray schools and his teachers allow us to celebrate Tourette Syndrome Awareness month by bringing in ribbons and snacks! Kane is able to teach his peers the ends and outs of Tourette! Kane has reached a major milestone this year!!

For the past couple years, he had been seeing a psychologist, biweekely. As of January of this year, he is no longer needing therapy!! He is a spontaneous little boy who enjoys riding his four wheeler and bicycle with his little sister! He will be participating in baseball this summer! His family and I are so proud to call him our superhero!

You can follow Kane’s story on his Facebook page here: https://www.facebook.com/awarenessforkane

REPORT: Long Island Costco Employee Says He Was Bullied Over Tourette Syndrome

In his act, standup comedian Chris Fox jokes about his struggles with Tourette Syndrome. But there’s nothing funny about his lawsuit against Costco, which he says removed him from his day job because of his condition.

After reading the link above, what does it bring to mind in terms of the kind of challenges have you or a family member faced with people who don’t “get” TS? Please comment below or on our Facebook page, as we’d love to get some conversation started!

Kane’s Journey: Tourette Syndrome

I created the Kane’s Journey: Tourette Syndrome Facebook page because last year when I posted something onto my Facebook about my son and his Tourette Syndrome, it was reported because someone found it offensive.

I am by no means ashamed or embarrassed of my son! I am extremely proud of him! He is such a tough little guy! On the Facebook page and now here on the TSParentsOnline blog I can post about his Tourettes/tics and how he is handling them while spreading educational facts on the syndrome. I have had so many people ask me questions through texts and private messages and requesting I start a page just for Kane and TS.

Having a child with impulse control disorder also can be very trying at times. His anger can turn on at a flip of a switch, a drop of a hat or with a wrong tone of voice. One morning it was the menu for school lunch. After a complete meltdown, he discovered he was reading the wrong day.

Most people who have seen these meltdowns have told me “Why don’t you spank him? How can you let him do that? He is just being a brat!” No, none of those apply. You see with impulse control disorder his anger cannot be controlled like yours and mine. He literally blacks out from time to time and when he comes out of it, he is always confused.

So please don’t judge my child for his emotional meltdowns, because, you don’t understand unless you’ve lived it.

More to come …

Questions about ignorance in the workplace

The following questions and comments were recently posted by a parent to the Facebook wall of the NJ Center for Tourette Syndrome & Associated Disorders (NJCTS).

Has anyone here ever felt it difficult explaining to co-workers the difficulties of having Tourette and the emotional/physical backlash that comes along with it? Has anyone ever had a co-worker who was completely ignorant and insensitive to the plight of someone with Tourette? Has anyone here ever felt completely mentally exhausted from constantly having to explain the social behavior of someone with Tourette?

I know I have. I have experienced all of this. Part of me wants to let it go … yet the other part feels a great injustice has occurred at my job. 🙁

Film Showcase featuring “A SynapTic Adventure: Tourette’s and Beyond” and Panel

PLEASE NOTE: TSParentsOnline, the NJ Center for Tourette Syndrome & Associated Disorders (NJCTS), and its directors and employees assume no responsibility for the accuracy, completeness, objectivity or usefulness of the information that follows in this blog post. None of the stated parties endorse any part of this post. It is merely being posted here for informational purposes only at the sole discretion and responsibility of Haydenfilms Institute.

With a mission of empowering, educating and funding global independent and student filmmakers, Haydenfilms Institute is proud to announce the screening of “A SynapTic Adventure: Tourette’s and Beyond” at 6 p.m. Wednesday, May 21, at TEK Park in Breinigsville, Pa.

Directed by local filmmaker and musician, Stephen Dijoseph, “A SynapTic Adventure” is a short documentary exploring his personal journey with Tourettes and demonstrates the way that living with the syndrome has inspired his creative mind. The long term goal is to gain the support of the community, and turn the short film into an educational series to raise awareness for the Tourette community to the world in a new creative way through the power of music, film, and ‘synaptic adventures’.

Also at the event will be a panel discussion featuring Dr. Robert Melillo, one of the most respected specialists in childhood neurological disorders in America.The event is free and open to the public from 6 p.m. to 8:30 p.m. in Building One of Tek Park located at located at 9999 Hamilton Boulevard in Breinigsville, Pa. — about 10 minutes north of Kutztown University.

Haydenfilms Institute will be announcing their fiscal sponsorship with Dijoseph and “A SynapTic Adventure” through the launch of a crowdsourcing campaign. Through a series of productions, Haydenfilms has a goal of creating a great experience for the audience and encourages everyone in the area to get involved during the campaign. To learn more about how you or your business can get involved, please e-mail Melissa LaRosa at mlarosa@haydenfilmsinstitute.org or visit our event page on Facebook.

New Canadian rock band features members with TS

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Say hello to Pariah.

They’re a young, ambitious Canadian rock band, and two of their members happen to have TS.

A five-piece ensemble, Pariah hails from Mississauga and Oakville, and they all love to write music, record and perform.

The band already has their own Facebook pageTwitter account and YouTube channel. On the latter you can hear a demo and watch a video of them performing live, and if you live in the Greater Toronto Area you’ll have a chance to see them play live on Sunday, April 27, at the Rockpile West in Etobicoke, ON.

Pariah is:

Chanel Martins – Lead Vocals
Jiverny Marshall – Rhythm Guitar/Vocals
Dylan Murray – Lead Guitar
Justin Speers – Bass
Ian Coll – Drums

Here’s a video of them performing a song called “Adrift.”