OK, so I promised I would write more about my experience with CBIT. CBIT is not a cure for TS, but is has helped me manage my tics a lot better. I have far fewer days that end in exhaustion and frustration, and I have managed to get rid of a lot of my previous tics completely. Don’t get me wrong, I still have plenty of tics, but I now have fewer tics and the tics I do have are less frequent, less severe.
One thing that’s helped a lot is having a therapist who is so understanding and who is willing to re-work the therapy based on what works for me and what doesn’t. We’ve had to make a lot of adjustments to the original CBIT protocols because paying attention to the premonitory urge for me makes my tics A LOT worse (and paying attention to the urge is supposed to be a big part of awareness training with CBIT).
So we have had to get rid of that part competently,and also rearrange a lot of other things as well. With a lot of tweaking, though, we have found what works best for me! All and all CBIT has worked better and has improved my tics more than any medication I’ve been on and the best part is NO SIDE EFFECTS!
So today when looking back at blog posts I came across a list of my tics that I wrote down back when I was in my junior or senior year of high school (about 3 years ago). What I’m going to do is I’m going to paste that list here and I’m going to cross out all the tics that I no longer have.
Some of these tics have just gone away because of the fact that tics come and go, but others have directly gone away because of the work I have done through my CBIT therapy. So here we go! Let’s see how many tics I’ve gotten rid of!
- Eye rolling to upper right corners
- Fast blinking
- Hard blinking/squinting
- Hard blink and hold eyes closed in a squint as hard as possible for 3 or 4 seconds
- Grimace with mouth combined with eye blink
- Pursing lips silently
Pursing lips to make a slight and quiet kissing sound Lifting upper lip Pouting lip
- Slight raising of lips into fast smile
Sticking tongue out Chomping teeth Opening mouth really wide (looks like a silent scream) Twisting lips to the left or right side of face Entire face squint (just-tasted-something-really-sour face)
- Slight neck bend to left or right side
- Neck turning which results in neck cracking
Violent head/neck jerking forward Shaking head fast from side to side Bending head backward