A place to call my own

As I sit here typing, my daughter sits quietly behind me. She’s painting in her art center. By “art center” I mean “re-purposed 1980’s ply board shelf unit” covered in discount white paint. Her legs are crossed. Her eyes are focused. And she hasn’t moved in one hour. I’d poke her to be sure she wasn’t a statue, but in case she fidgets, I don’t want cobalt blue on my favorite thrift store cardigan.

sophia 2

Me? I’m the opposite of disciplined and steady. I bolt up up to take a picture. I plop down to write a blog post. I get up to get a cup of coffee. I sit down to check an email. Oh, what was that meme on Facebook? I’ll look at that really quick. And ha! That vimeo is hilarious. That cat sure knows how meow Jingle Bells like a pro. Oh, and for the record, my elf name is Perky McJiggles. Score!

By the time I’m done, I’ve got nothing accomplished but a spinning brain. My daughter, on the other hand, has a beautifully painted rainbow-colored dog which will soon house shiny new crayons. With my little Hermione Granger, this translates to magic. Precise, practical, whimsical but containedmagic. With her mother, there is magic also, but things often explode.

When the kids were younger, I’d pass of my messed up experiments as “creativity!” and “mad cap hilarity!” I’d hail the virtues of being flexible and turning lemons into lemonade! But the truth is, I wasn’t (and continue to not always be) prepared for events and every day occurrences in my domicile.

Last year, I almost missed my daughter’s choir performance because I assumed the start time was the same as rehearsals, despite mounds of paperwork saying the contrary. Where was the paperwork? In the piles of everything else on my desk. I had meant to file it, but somehow, that resolution never took off.

That was 1992.

This has all started to change since my job ended in October. I’m getting more organized. I have to be. Not only is my family worth it, but so am I. Where do I want to work next? What do I really want to write? WHO THE HECK AM I? The verdict is still out, but I can promise one thing: As long as I’m reacting to life, rather than producing it, I’m only going to get half measured results. I need to be intentional.

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Did you miss the 5th annual NJ Walks for TS at Mendham? Catch up on it here!

Since 2010, NJCTS and New Jersey’s Tourette Syndrome community have gathered at Borough Park each November for family fun run/walk to promote TS awareness and support the New Jersey Center for Tourette Syndrome & Associated Disorders’ (NJCTS) Education Outreach Program.

On November 15, hundreds of people braved the cold to have fun, raise tens of thousands of dollars and show the state the strength of the TS community! In case you couldn’t join us, we have all the resources you need to help feel as if you were ACTUALLY there! Here are some links:

More than $32,000 has been raised so far, and donations will be accepted through December 15! YOU CAN DONATE HERE!

The 5th annual NJ Walks for TS at Mendham was a “day to remember” for all!

We have THREE photo albums, each with dozens of beautiful shots in them, on our Facebook page! If you see yourself, tag yourself!:

  1. Photo album No. 1
  2. Photo album No. 2
  3. Photo album No. 3

Do you see something that’s missing from this list? If so, let us know! We’ve got lots more information we could get you!

Cresskill School District raises more than $900 for NJCTS through Jeans Day

The Cresskill School District participated in the first annual Tourette Syndrome Awareness Day on Friday, May 16, in recognition of Tourette Syndrome Awareness Month.  The goal was to raise awareness and educate the entire student body and Cresskill faculty about the neurological disorder.

Tourette’s is an inherited neurological disorder characterized by repeated involuntary and uncontrollable vocal (sounds) and motor (physical) movements also known as tics. Tourette’s and its associated disorders (ADD, ADHD, OCD, anxiety) occur in 1 out of every 100 children.

The day was spearheaded by a brave Merritt School fourth-grader who has Tourette’s.  Students were encouraged to wear green in a show of solidarity for those affected by the disorder and staff were given permission to wear jeans for the day in exchange for a small donation.  The students and faculty raised more than $900, which will be donated to the New Jersey Center for Tourette Syndrome (NJCTS).