So I decided to make a full list of every single tic I have at the moment that I can actually recall and put down on paper, or in this case, the Internet. A rough estimate, I think, is that I probably have more than 50 tics at the moment. My guess is somewhere between 50 and 60.
Let’s see how close I am with that. I figured I just wanted to see how many I actually have right now. I doubt I can even list them all there are probably so many. Thank you, Tourette’s! (That’s sarcasm!)
- Eye rolling to upper right corners
- Fast blinking
- Hard blinking/squinting
- Hard blink and hold eyes closed in a squint as hard as possible for 3 or 4 seconds
- Grimace with mouth combined with eye blink
- Grimace with mouth without eye blink
- Pursing lips silently
- Pursing lips to make a slight and quiet kissing sound
- Lifting upper lip
- Pouting lip
- Slight raising of lips into fast smile
- Sticking tongue out
- Chomping teeth
- Opening mouth really wide (looks like a silent scream)
- Twisting lips to the left or right side of face
- Entire face squint (just-tasted-something-really-sour face)
- Slight neck bend to left or right side
- Neck turning which results in neck cracking
- Violent head/neck jerking forward
- Shaking head fast from side to side
- Bending head backward
- Shoulder shrugging, both at same time or one at a time
- Pulling shoulders inward toward sockets
- Cracking shoulders
- Jerking both arms fast outward in front of me
- Cracking elbows
- Stretching arms all the way straight in front of me slowly
- Tilting head backward while taking in a sharp breath
- Tightening muscles in neck
- Tightening muscles in arms
- Arm contortions
- Jerking both arms toward chest vertically pretty hard
- Jerking right arm toward chest vertically pretty hard
- Hitting chest pretty hard with right hand
- Hitting stomach very hard with right hand (sometimes so hard that I feel dizzy and start coughing and gagging as a result)
- Pushing hands against face really hard
- Hitting inside of elbows with hands
- Hitting things (chairs, laptops, desks, tables, anything in reach, etc.)
- Hitting eyes/parts of face or head
- Making fists with hands and clenching them
- Finger stretching and moving
- Bending hands at wrists fast
- Extending middle finger
- Making guns out of my finger
- Cracking knuckles
- Tightening all muscles in hands and fingers
- Tightening muscles in chest, throat and stomach so tight I am not able to breathe
- Lurching neck forward
- Tightening muscles in legs
- Jerking legs outwards
- Stomping
- Rolling ankles
- Standing up on tip toes
- Kicking
- Drumming on tables
- Knee knocking
- Almost constant leg shaking when sitting
- Foot shaking really fast
- Separating toes
- Raising big toe
- Crossing over first two toes
- Jerking entire upper body backward
- Full-body jerking tics
- Rolling neck
- Scratching entire body all over really fast
- Grabbing crotch area
- Hitting back of neck and back with hands
- Full-body muscle tightening, which causes me to slip down in my chair and hold the position
- Rubbing feet together in bed
- Jerking body upward in bed and just jerking all over the place in bed (fish-out-of-water tic) … Oh gosh I haven’t even gotten to the vocal tics!!!
- Screeching sound
- Forceful “Huh” or “Heh” sound
- Bird-chirping sound
- Whistling
- Loud sniffling
- Slurping sounds
- Gasping
- Taking in sharp breaths/breathing tics
- Clicking in back of throat
- Loud high-pitched noises
- High-pitched tea-kettle noise
- Hitting bottom of hands together forcefully
- Hitting feet together
- Forceful coughing so hard that it makes the muscles in my back hurt and gagging as a result
- Clearing my throat
- Grunting noises
- Air swallowing
- Biting my lips
- Licking my lips
- Picking my lips
- Sucking in the side of my lip to make a pucking sound
- Hiccuping noises
- Squeaking noises
And I think that’s it! Wow, 93! Talk about a lot of tics … I way underestimated. I can’t believe that I have that many! Gosh! How many do you have?
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Yeah I have about all of those like in all body parts lol but without the loud vocal tics or motor tics that usually catches peoples eye. Unless it’s really bad then I’ll be like rotating whichever shoulder like 50+ times in a minute, along with what I like to call it “stretching” my eyes to where I’m told I’m “rolling” my eyes at someone lol But I actually have PANDAS diagnosis since age 9 and I’m 19 now, it stands for Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal infections so from strep throat and the antibodies attack the brain instead causing inflammation of the Basil ganglia part of the brain which controls motor, behaviors, and emotions with sensory issues due to neurons of the area being damaged. I got misdiagnosed with Tourette’s since I have the symptoms listed above and long story short my initial primary doctor who helped me when I was little got old and retired and now my new primary is young and fresh and says since I’m not pediatric anymore do not test positive for strep in that current moment that I dont have PANDAS anymore and that now i have the above listed misdiagnosis now and it’s very frustrating and I hope I don’t end up like many with PANDAS in adulthood where they can’t find anyone that actually knows about PANDAS ever since they became an adult. There is so much more and awareness needs to be spread I’m glad I found this website though because listing symptoms do help a lot when brain fog hits lol Much love to everyone <3
I may or may not have Tourette’s. This never usually happens in public, if so very rarely. Randomly with no control, I tighten all of my muscles to the point of we’re i don’t breathe. I also clench my fists and smash them against my face. I sometimes make a sniffing sound when I try to control it. Most of the time I make this loud screech or some loud noise randomly. I don’t like when this happens, it usually happens from intense motion like happy/ excited, or scared. Any thoughts?
That’s a lot! I haveamy of those same tics too! Get so many stares from people, but I just be myself
Golf sounds fun! I’m a coxswain for a rowing team. So I basically sit in the back or front of the boat and steer the boat and well as motivate the rowers and act as a leader to make sure everyone is doing what they are supposed to do! Glad you don’t let your tics get in your way either. That’s the way it should be! :)
I’ve never heard of a coxswain before. You must have a lot of strength in your arms! That must be really tiring after a while, I give you a lot of credit!
I have maybe a little over 2/3s of those physical tics, and a few of those vocal tics, plus some tics of my own. I haven’t been evaluated for Tourette’s Syndrome, and I’m not sure I have it because a lot of tics doesn’t necessarily mean I meet the criteria. I’m also only 15 and I’m told they could go away in adulthood (or at the very least, diminish.) If anyone with a similar experience wants to talk about it you can contact me at the following:
Discord: Dunno#4757
Email: cartfullofdiamonds@gmail.com
It is more likely I will answer you if you message me on Discord, as that email address is mainly for junk.
I get extra time and accomodations too! What sports do you participate in? I want to do golf in the spring! Wow, those are pretty difficult schools to get in to. I give you a lot of credit, you must be really smart! I never let my tics get in the way of what I want to do either!
I manage just fine. I am an A student, the editor-in-cheif of my schools literary magazine, a published poet, and I participate in sports (crew as a coxswain!). I’m a senior in high school and I have applied to schools like Princeton, Yale, Washington University, Brandeis, and Duke. I know I will love college! I never let my TS stop me from doing what I love and succeeding!
Don’t feel bad for me! I’m so used to all the tics; it’s just part of me. It is hard to concentrate in school for me sometimes or to take tests but I get extra time and accommodations in school and on standardized tests which really helps. Also I don’t necessarily have EVERY single one of those tics in one day. It really varies. Some days I’m mainly just making squeaking noises and doing facial tics and then other days I’ll say…..have very few vocal tics and will just be doing arm tics and muscle tics. Every day is a different story and a different set of tics.
I feel so bad :( It must be really difficult for you to concentrate in school. How do you mangage with all of these tics?
I know! I was amazed that I actually have that many! I just sat down and listed as many of them as I could think of! Lol :)
Oh my goodness that is a lot. How in the world do you count them all? I tighten my muscles in my arms too.