What not to say to someone with OCD

I wanted to share this from the International OCD Foundation:

“What not to say to someone with OCD”

People say the darnedest things. And sometimes, they say the most insensitive things. Whilst it’s great that obsessive compulsive disorder (OCD) has received enough media attention that it’s no longer a dirty secret, it is obvious that many people still fail to understand the true severity of this anxiety disorder.

When people say things such as,“I’m so OCD about that,” what they don’t get is that were they really suffering from OCD they would be trapped in an endless cycle of intrusive thoughts and anxiety, held hostage by their own minds, and often barely able to function in their lives.

So whilst it’s great that sufferers of OCD can freely say they have OCD without being confronted with questioning looks, we the listeners need to respond appropriately. And this begins with knowing what not to say. Here are 7 things not to say: Continue reading

A bit more about me for a documentary about Tourette Syndrome

Here’s a little bit more about me and my story that will be published on a Tourette Syndrome documentary that RuthieP and LoganK are working on!

I am Aisling. I am 19 years old, and I live in Derby, England.

My TS was diagnosed when I was 18, and I didn’t have any obvious tics until I was 17. My tics began as a twitch in my right shoulder, which has never really gone. Other motor tics are now making faces, sticking my tongue out, my body jolting, pinching or hitting myself and compulsively rubbing the skin between my fingers.

My first vocal tic was just sniffing but has now expanded into screaming, stuttering, saying words such as “Weasels!” and sometimes palilalia and echolalia.

The hardest part of having TS for me is knowing how far I can push myself without going too far. I also find it hard when I realise can’t do some things as well as I used to be able to before I had tics, such as concentrate!

I really enjoy drama and am doing that as part of my degree at university now. I also really like creative writing, which I haven’t done as much since I left school. One of my favourite things to do is baking as well.

I think people should know that TS isn’t as simple, scary or extreme as the media seem to portray it, and most people with TS are able to live normal lives. Once people understand this, hopefully they will learn about what TS really is, and meet the person beneath the syndrome!

Super Duper Thingie Majiggie Wednesday! (Special Edition)

Herro der people of the interwebs, and welcome to the long-awaited answer post! So, to get this show on the road, the whole “incident” that got me detention 2 weeks ago was NOT, I repeat, NOT, an impulse! It was, in fact, a natural instict known as “Fight or Flight.” I recommend you look it up.

My grades, possibly some of the best ones I’ve ever gotten, state that I’m the smartest kid in New Jersey. Now, I’m not bragging at all. That’s kinda all the stuff I gotta say. WAIT! Note to Joshua: I DO know who Monty Python is. Sorta. That’s all, folks!

My free-verse poem about ticcing

Ticcing.

Imagine having no control.

Of yourself, your muscles, vocals:

You fling your limbs or scream aloud,

And everyone stops to stare.

Trying your hardest to suppress the urge.

After what seems like hours,

You realize it’s pointless,

And you tic.

People point and laugh,

As though they’re watching a clown.

Causing you to want to flee your town.

They don’t — and never will — understand.

You feel like a fish out of water,

Flopping around with no control.

This is what it means to tic.

And this — is Tourette Syndrome.

Tourette Syndrome awareness in pictures, part 2

I found a new photo editor online last week, and it’s totally awesome! I have used the photo editor to make pictures of Tourette Syndrome/OCD quotes, complete with comments and quotes from readers on my A Little Bit Different: Tourette Syndrome Facebook page!

I’m going to be making more than the ones I’m about to show you here, so feel free to leave a comment here or on my Facebook page with your favorite TS/OCD quote, maybe something you have said about TS/OCD, something a child has said, something you think should be known about TS/OCD, or a quote you found that you like. I will pick a few and edit them into pictures, just like these: 🙂

Continue reading

Tourette Syndrome awareness in pictures, part 1

I found a new photo editor online last week, and it’s totally awesome! I have used the photo editor to make pictures of Tourette Syndrome/OCD quotes, complete with comments and quotes from readers on my A Little Bit Different: Tourette Syndrome Facebook page!

I’m going to be making more than the ones I’m about to show you here, so feel free to leave a comment here or on my Facebook page with your favorite TS/OCD quote, maybe something you have said about TS/OCD, something a child has said, something you think should be known about TS/OCD, or a quote you found that you like. I will pick a few and edit them into pictures, just like these: 🙂

Continue reading

The Dominance Complex

Hey guys! I am now on Thanksgiving break, and it’s so nice to be home! Home-cooked meals, sleeping my with puppy, seeing my high school friends … what more could I ask for? So, I’m very happy to be at home, and my friend from high school will be coming over so she can meet my puppy and so we can catch up! I’m excited! And I get to eat Thanksgiving food and it’s my birthday in just 7 days!!! Yay!

Anyway, besides all that I wanted to share with you guys a little Tourette moment I had the other week. At my college, a bunch of Indian dance groups put on a giant Diwali performance in our main theater on campus, and I went with a bunch of my friends from my floor to see the performance.

The performance was excellent, and I really really enjoyed it! It was 3 hours, though, and I was holding back my vocal tics, so my motor tics got pretty bad. Luckily, I was sitting next to my closest friends in college, who totally understand, so they didn’t even turn their heads when my motor tic where I hit myself in the chest and arm started acting up.

After the Diwali performance was over, we all went to eat dinner on campus. Halfway through our dinner, a guy who I didn’t know joined us. He knew one of my friends who we were eating dinner with, but I hadn’t met him before. I, of course, was still doing my chest hitting tic, though.

After about 10 minutes of sitting with us, he asked me, “Why are you hitting yourself in the chest?” I really didn’t know the guy, and I probably wasn’t going to see him again, really, so I tried to brush the question off without telling him I had Tourette. He was persistent, though, and wasn’t very happy with my non-Tourette explanation, so he then asked me, “Is it like a dominance thing or something?” and then proceeded to imitate my tic.

Lol, a dominance thing! That’s probably one of the most obscure things a person has thought my tics to be. Sure, I get people who think I am cold, or sneezing, or have a cold, or am just nervous, but I’ve never really had someone ask me if I had some type of dominance complex before. Lol, I didn’t want him thinking I was that weird.

I think having Tourette is much better than having a dominance complex that causes you to hit yourself in the chest. So I just gave in and told him that it was a tic and that I have Tourette. His response to this was, “Oh,” and then he changed the subject. Lol, I think he felt bad.

My life with Tourette Syndrome

I have been having a really rough time living with Tourette Syndrome and anxiety right now. My life with TS has been pretty rough ever since I found out I had TS. I really have been having a hard time getting through my struggles, but I have been pushing through it, but it has been very hard. Thanks to my brother and my parents and all their support. I really appreciate all the things that you do for me. It has really been helpful.