Would you like to share your TS story? If so, please send a private message to my Facebook page or send me an e-mail at firstname.lastname@example.org. Please answer these questions (by either typing them out or videotaping) and send a picture or two to go with it! Then I will post your story on this page!
Q: What is your name and how old are you?
A: My name is Seth Tucker, I am 29 years old, and I live just outside Washington DC.
Q: How long have you had Tourette Syndrome?
A: I’ve had Tourette’s since I was 7 years old.
Q: What kinds of tics do you have?
A: My most common tics are my throat clearing and facial grimaces. I also have frequent arm/neck/leg movements, and a few tics that cause me to hit myself or bang my head into objects. Some tics come and go and they vary in frequency and severity.
Q: Do you have any associated conditions?
A: I have been diagnosed with OCD, ADHD, anxiety, auditory processing disorder and sensory processing issues.
Q: What is life like for you living with Tourette Syndrome?
A: While working I usually don’t have an issue with my Tourette’s. By using CBIT and medication I am able to generally suppress my tics. When I get home most of the tics explode out of me and I’ve broken furniture in the past. I’ve learned to take off my shirt and pants, wrap myself up tightly with a blanket and just let my tics go. It’s much safer for me as I don’t hurt myself as much.
Q: What advice can you give others who are newly diagnosed with Tourette Syndrome?
A: Learn to laugh and let the little things go. Life is too short and awesome to let something bother you for long,
especially if it’s something you can’t control.
Q: What is the hardest thing about living with Tourette Syndrome?
A: For me it’s watching others suffer with it (which is why I got involved with the TSA). While I have a few extreme tics, for the most part it’s the least challenging part of my day.
Q: What do you think other people should know about Tourette Syndrome?
A: The way we perceive things aren’t always the way they are. If we think a kid is good we’ll notice all the good things they do, if we think they’re bad we’ll notice all the bad things they do. By choosing to see someone with Tourette’s as a person and not some strange thing or poor soul suffering with a disorder, you will see all the amazing qualities that person has (and hopefully they will too).
Q: What are your strengths and what do you like to do?
A: I love working with kids and helping them see the good in themselves. I work with kids who are too often told they can’t or that they’re stupid by those around them. I love it when they get to see just how special and amazing they really are.
Q: What are your goals in life?
A: I’m living my dream, I’m working to make the world a better place one kid at a time. I’ve managed to get my professional life in order and am currently pursuing my National Board Certification for Teaching, something that only 3% of teachers have been able to accomplish. I’d like to start putting my social life in order as its always been an area of weakness for me and I need to learn how to start thinking about myself for a change.