I have a son with Tourette Syndrome and Obsessive Compulsive Disorder. I want to share what I have learned over the years and perhaps learn something new from other parents. My son was diagnosed around age 7, and he will be turning 12 soon.
We have learned a lot over the years and have had the good fortune of finding wonderful doctors and therapists. I am tremendously grateful to them for the strides my son has made over the years.
Like those with TS know very well, there is a constant waxing and waning of symptoms. My son started middle school in September, and to my surprise the transition went better than I expected. My son is a very hard worker with a lot of determination and that certainly has a lot to do with it.
Over the years, I have been very disappointed with the lack of support groups for children with TS & OCD. Although there are many options for the parents, I have yet to find something where kids could meet twice per month to talk about what it is like living with Tourette.
I feel this is so important and so desperately needed. There is nothing like being able to talk to someone who truly understands what you feel and what you go through on a daily basis. My son is social and does have some very nice friends who seem to accept him for who he is, but I would love to meet another family with a 12-year-old boy in the State of New Jersey.
I think it would help my son feel that he is not alone and hopefully will help another child, too! We will be at NJ Walks For TS at Ramapo College on April 14. I am hoping we meet some people and maybe can exchange e-mails.