Awareness. Acceptance. Action. Advocacy. All needed when it comes to informing people about Tourette Syndrome at the national, regional, state and local level. Our Facebook page (give us a “like”! ) is dedicated toward these very things, especially when it comes to supporting the proposed federal Tourette Syndrome legislation.
Yes, we have a request of you. And no, it won’t take more than just a few seconds. If creating a better future for children with Tourette Syndrome is important to you, then there should be no reason why you don’t click here and support the proposed federal Tourette Syndrome legislation.
You can leave your Congressional representative a note just like this one and show them that Tourette Syndrome legislation is important to you, just like it is in New York State:
RShiner in New York’s 22nd DistrictI support H.R. 146 (“To amend the Public Health Service Act to provide for the expansion, intensification, and coordination”) because Tourette syndrome is an understudied disorder. Tourette’s often is significantly impairing in part because it is accompanied by a variety of other problems beyond tics. Significant progress has been made in understanding Tourette’s in the last decade, but we still know far less about this disorder than other neuropsychiatric disorders in childhood (for example, autism or ADHD). My son Leo has Tourette’s, and it has significantly affected his life. But, the research that has been done already has helped us navigate life with this difficult disorder. Please seriously consider funding this request!