Hi! I never thought about participating on the blog before, but ran across it today and thought that it sounded like a good idea. As a parent of a 17-year-old boy with Tourette Syndrome, my experiences over the years might serve to help parents deal with a new diagnosis. We have been through much, but survived. Our son is doing well now.
Over the years, the New Jersey Center for Tourette Syndrome has offered a lifeline to many. We have taken advantage of the wonderful family retreat weekends at Camp Bernie and found that networking with other parents there has proved a valuable resource. We found our son’s doctor through another parent at camp.
Thank you for providing a forum through which parents can connect and be comforted. I will look forward to participating.
My son is 14. We live in Southern Ocean County. Is there a network down here? We have no contact with others with Tourettes. It would be nice to show my son that he’s not alone.
Hi Debra, thanks for letting us know! We recommend that you call NJ Center for Tourette Syndrome ASAP at 908-575-7350 and ask for Leanne. She will be able to connect you with families in your area, as well as other programs, services and events!