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Resources for Adults with TS

We’re committed to providing support, resources, and connections for adults with TS and other tic-related disorders.

TS in Adults

Tourette Syndrome (TS) is a neurodevelopmental disorder that most often becomes evident in early childhood or adolescence. On average, TS is most severe around nine years of age, with tics typically decreasing in late teens to early adulthood. However, many find that tics remain consistent in adulthood and in some cases, tics may worsen in adulthood. 

While TS in adulthood presents unique challenges, adults with TS can lead fulfilling lives.

If symptoms affect your daily life, the newest guideline from the American Academy of Neurology recommends that doctors first consider prescribing a treatment called Comprehensive Behavioral Intervention for Tics. CBIT combines relaxation training, habit-reversal training, and behavioral therapy to help reduce tic symptoms. The guideline states that CBIT is effective in both adults and children, and has no major side effects.

PEER SUPPORT

Community Connections

Our online and in person group for adults with TS, age 18 and above. Join us as we come together to build our community and connect with others navigating both the TS journey and adulthood. Here you can comfortably discuss your experiences, share advice, and build relationships with those who understand your unique challenges.

October 17th, 2026, 12:30PM, in person meetup

October 19th, 2026, 7:00-8:30PM, virtual

November 16th, 2026, 7:00-8:30PM, virtual

December 14th, 2026, 7:00-8:30PM, virtual

Interested in joining Community Connections for Adults with TS but want to know more first? Contact Alina Osborn.

HELPFUL RESOURCES

Navigating Benefits and Employment

Disability Benefits

The National Alliance on Mental Illness website explains that Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) offer monthly financial support to individuals with mental illness who cannot work, with SSDI based on work history and SSI based on financial need.

Navigating the Disability Benefits Process

This Patient Advocate Foundation guide can walk you through understanding the disability process and provide step-by-step instructions for building and submitting an application.

Job Accommodations Network

The AskJAN.org provides guidance on workplace accommodations for individuals with TS under the ADA, covering common limitations, practical accommodation solutions, and tools to help employees and employers create a supportive work environment.

Online Webinars

Tic Talk Blog

The Challenges of Running a Fundraiser

One of the least obvious aspects of what an advocate does is the actual planning of fundraising events. In order to continue our mission of educating and advocating on behalf of those with Tourette Syndrome, we need to raise funds. For me, I chose to plan a track and...

You’re More Than Your Tics: Starting the School Year with Tourette Syndrome

Hi, my name is Dylan Straley, and I’m a junior at Colts Neck High School. Summer flew by, and now it’s that time of year again—back to school. I know the start of the school year can feel stressful, but sometimes the best thing you can do is just sit down, take a...

Researchers Discover Dozens of Genes Tied to OCD and Tic Disorders

A Rutgers-led international collaboration has identified 36 genes that substantially raise the risk for obsessive-compulsive disorder (OCD) and chronic tic disorders – providing what two researchers said is the most detailed biological understanding of how these conditions develop – and how they might eventually be treated.

Physician Referral List

Our Physician Referral List is comprised of more than 200 neurologists, psychiatrists, psychologists, and social workers who are well versed in treating TS and associated disorders. The list is compiled through recommendations from our families as well as other clinicians. Our referral network is a direct link for families to medical professionals across the state who can address their treatment needs.