Resources for Parents & Caregivers of Children with TS
Explore a comprehensive range of resources designed to support parents and caregivers in navigating the challenges of Tourette Syndrome. Help us get to know you and your family by filling out the form below — the more you share, the better we can support you.
Facts for Families
Up to 1 in 50
Children are affected by Tourette Syndrome or other persistent tic disorders
Boys are 3x more likely to be diagnosed than girls
The average age that parents first notice their child's tics
Preparing for Your First Doctor's Visit
Navigating Your Initial Consultation
Embarking on your first doctor’s visit for Tourette Syndrome can be daunting, but with the right preparation, it can be a productive experience. Start by compiling a comprehensive list of symptoms, noting their frequency and any triggers. Bring along any previous medical records and a detailed family medical history. Prepare a list of questions to ask your doctor, focusing on diagnosis, treatment options, and management strategies. It’s also helpful to bring a trusted friend or family member for support and to help remember the information shared during the appointment. Remember, this visit is a step towards understanding and managing TS effectively.
Our Physician Referral List is comprised of more than 200 neurologists, psychiatrists, psychologists, and social workers who are well versed in treating TS and associated disorders. The list is compiled through recommendations from our families as well as other clinicians. Our referral network is a direct link for families to medical professionals across the state who can address their treatment needs.
Physician Referral List
Our Physician Referral List is comprised of more than 200 neurologists, psychiatrists, psychologists, and social workers who are well versed in treating TS and associated disorders. The list is compiled through recommendations from our families as well as other clinicians. Our referral network is a direct link for families to medical professionals across the state who can address their treatment needs.
Education and Support
Tourette Syndrome and Social Challenges
April 29, 2026
7:30 pm
Virtual
Dr. Graham Hartke will give an overview of the social challenges that may present with Tourette Syndrome as well as some strengths and opportunities.
Parent Support Group
May 20, 2026
9:00 am
Virtual
The monthly NJCTS support group, facilitated by Dr. Jeremy Lichtman, is an avenue for parents to seek support and guidance.
Understanding OCD: What It Is, What It Isn’t, and How It’s Treated
May 20, 2026
7:00 pm
Virtual
Join Dr. Marla Deibler for an overview of OCD—its presentation, development, and evidence-based treatments like ERP and pharmacotherapy—to support recovery.
Invite us to Educate
Join our Parent Advocacy Council
Common Symptoms of Tourette Syndrome
Tourette Syndrome is characterized by involuntary movements and vocalizations called tics. These symptoms can vary in intensity and frequency, often changing over time.
Motor Tics
Vocal Tics
Complex Tics
Echopraxia and Echolalia
Coprolalia
Sensory Tics
Tourette Syndrome FAQs
Explore our comprehensive FAQ section to find answers to common questions about Tourette Syndrome, its management, and support options.
What is Tourette Syndrome?
Tourette Syndrome is a neurological disorder characterized by repetitive, involuntary movements and vocalizations called tics.
What causes Tourette Syndrome?
The exact cause of TS is unknown, but it is believed to involve genetic and environmental factors affecting brain function.
How is Tourette Syndrome diagnosed?
Diagnosis is typically made by a healthcare professional based on observed symptoms and medical history, as there is no specific test for TS.
Can Tourette Syndrome be cured?
There is no cure for TS, but treatments are available to help manage symptoms, including behavioral therapy and medications.
Are there any lifestyle changes that help manage TS?
Regular exercise, stress management, and a healthy diet can help reduce tic severity and improve overall well-being.
How can I support someone with Tourette Syndrome?
Support can include being patient, understanding, and advocating for accommodations in educational and social settings.
Exploring Tourette Syndrome
The UpTIC Podcast
The UpTIC podcast offers insightful discussions on Tourette Syndrome, featuring expert interviews, personal stories, and the latest research.
Events for Families
Camp FantasTIC
June 19 – 21, 2026
Black Rock Retreat
Camp FantasTIC offers an unforgettable experience for children with Tourette Syndrome, combining fun activities with therapeutic support. Located in the picturesque hills of Pennsylvania, the camp provides a safe and inclusive environment for personal growth and friendship building.
Available on youtube
Webinars
Our webinars feature topics of interest for parents, medical professionals, teachers and more.
Genetics Collaboration
Practicum and Clinic with Rutgers University
In collaboration with Rutgers University’s Graduate School of Applied and Professional Psychology (GSAPP), we are proud to support the nation’s first university-based, stand-alone teaching practicum and clinic for the psychological evaluation and cognitive-behavioral treatment of TS, offering services including individual and family therapy, habit reversal therapy, and social skills development. The program offers sliding scale rates for individuals and families with demonstrated financial need.
We encourage families in our community to reach out to us for a referral to this exceptional clinic.
CHILD STUDY CENTER
Center at Langone Health
The Center at Langone Health is a premier facility dedicated to providing comprehensive care for individuals with Tourette Syndrome and associated disorders. Their team of experts offers a multidisciplinary approach, combining cutting-edge research with personalized treatment plans to address the unique needs of each patient. We provide a range of services including diagnostic evaluations, medication management, behavioral therapy, and support groups. In the last year, the Child Study Center has provided service to over 150 children and teens with TS and engaged in pilot clinical research, testing the impact of effective treatments developed for related disorders in persons with TS.
Contact the Study Center directly through the website or at 201.465.8111 and let them know you were referred by NJCTS.