For the first time in more than two decades, the New Jersey Center for Tourette Syndrome (NJCTS) will not receive its state funding this year. NJCTS is the only organization in the state of New Jersey that supports those with Tourette Syndrome (TS), a condition that affects an estimated 1 in 50 people in the state.
State funding has long supported core NJCTS programs, including Camp FantasTIC, the Tim Howard Leadership Academy, and the Youth Development Program. The loss has already had a significant impact on the organization, including the elimination of three staff positions, and threatens NJCTS’s ability to sustain the level of programming and support families have come to rely on.
“This funding has been part of how we’ve been able to show up for families across New Jersey for years, and losing it changes what we’re able to do,” said Hilary Kruchowy, Executive Director of NJCTS. “We’re not stepping back from our mission, but we can’t replace this kind of support on our own. We need our community now more than ever.”
NJCTS is asking the community for support in four ways:
Volunteer. NJCTS relies on volunteers to help fill the gap left by reduced staff capacity. Those interested can reach out at info@njcts.org.
Attend or sponsor the Dream, Shine, Soar Gala. NJCTS’s annual gala takes place October 29, 2026. Tickets and sponsorship opportunities are available at www.njcts.org/gala.
Build a team for NJ Walks for TS and fundraise. Registration for NJ Walks for TS teams opens next spring. Plan to lead a team and fundraise when it matters most.
Donate. NJCTS is always accepting donations and welcomes you to become a recurring donor or One of the GreaTS (a donor who commits to an annual donation of $1,000+). All donations can be made at www.njcts.org/donate
NJ Center for Tourette Syndrome and Associated Disorders is a not-for-profit organization committed to the advocacy of children and families with Tourette Syndrome, tic disorders, and associated disorders. Dedicated to delivering high-quality services, the Center recognizes the importance of educating the public, medical professionals, and educators through programs and partnerships with schools, health centers, and universities. To learn more about NJCTS, visit www.njcts.org or call 908.575.7350.