Resources for Adults with TS
We’re committed to providing support, resources, and connections for adults with TS and other tic-related disorders.
TS in Adults
Tourette Syndrome (TS) is a neurodevelopmental disorder that becomes evident in early childhood or adolescence. Most people with TS experience their worst tic symptoms in their early teens, but tics typically lessen and become controlled by the late teens to early 20s. For some people, TS can be a chronic condition with symptoms that last into adulthood. In some cases, tics may worsen in adulthood.
If symptoms affect your daily life, the newest guideline from the American Academy of Neurology recommends that doctors first consider prescribing a treatment called Comprehensive Behavioral Intervention for Tics. CBIT combines relaxation training, habit-reversal training, and behavioral therapy to help reduce tic symptoms. The guideline states that CBIT is effective in both adults and children, and has no major side effects.
Resources for Co-Occurring Conditions
PEER SUPPORT
Community Connections
Our online and in person group for adults with TS, age 18 and above. Join us as we come together to build our community and connect with others navigating both the TS journey and adulthood. Here you can comfortably discuss your experiences, share advice, and build relationships with those who understand your unique challenges.
Did you know that many of our Community Connections members also participate in a meditation group for people with tics? Learn more here.
HELPFUL RESOURCES
Navigating Benefits and Employment
Disability Benefits
The National Alliance on Mental Illness website explains that Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) offer monthly financial support to individuals with mental illness who cannot work, with SSDI based on work history and SSI based on financial need.
Navigating the Disability Benefits Process
Job Accommodations Network
The AskJAN.org provides guidance on workplace accommodations for individuals with TS under the ADA, covering common limitations, practical accommodation solutions, and tools to help employees and employers create a supportive work environment.
Online Webinars
Tic Talk Blog
Physician Referral List
Our Physician Referral List is comprised of more than 200 neurologists, psychiatrists, psychologists, and social workers who are well versed in treating TS and associated disorders. The list is compiled through recommendations from our families as well as other clinicians. Our referral network is a direct link for families to medical professionals across the state who can address their treatment needs.