I first got involved with the New Jersey Center for Tourette Syndrome (NJCTS) early in high school as a Youth Advocate. It was my first time connecting with others who also had Tourette Syndrome (TS), and through Youth Advocate trainings, I learned a lot about different experiences with TS. I had the chance to apply my own perspective and speak at schools and community events, raising awareness about TS. One of my proudest moments was being named Youth Advocate of the Year in 2020, which gave me my first real experience in advocacy. It opened my eyes to how I could use my voice not only for myself but for others too.
I went on to attend Penn State University, where I earned my Bachelor of Science in Elementary and Early Childhood Education, with a Minor in Special Education, graduating Cum Laude. As a student teacher in Kindergarten, I worked with incredible students, and it reinforced my passion for advocating for others—especially students who need a little extra support. Volunteering with Penn State’s Student Disability Resource Office and other organizations allowed me to keep pursuing my passion for inclusivity, equity, and equality.
Now that I’ve graduated, I’m exploring job opportunities in education and beyond, with a focus on continuing my work in advocacy and helping others succeed. I’ve moved back home with my family and my cat, Binx. I love staying active, whether that’s lifting weights, hiking, or trying a new workout class with friends. Cooking new recipes is also one of my favorite ways to relax and have fun. I also have a deep love for art and fashion, whether I’m painting, thrifting, or creating something new!
Tourette Syndrome is still a part of my life, just as much as it was when I first attended NJCTS training. Over the years, though, I’ve grown in confidence and learned so much about advocacy. TS doesn’t define me, but it’s certainly shaped my journey and given me unique ways to navigate the world. I’ve met so many inspiring people along the way who have encouraged me to keep pushing forward. Without NJCTS, I wouldn’t have developed the passion for advocacy that I carry with me today.
A little fun fact—while I was working as a preschool teacher, I came across a children’s book that featured a girl with TS. I was so happy to finally see someone like me represented in a story! It reminded me how important representation is and how much it matters to see yourself in the world around you.
To celebrate 20 years of NJCTS we will be showcasing 20 stories of adults with TS who were once involved in the organization and now all grown up! Stay tuned as we share all of these incredible and successful stories!