{"id":4872,"date":"2018-04-19T16:12:02","date_gmt":"2018-04-19T16:12:02","guid":{"rendered":"https:\/\/njcts.org\/tsparents\/?p=4872"},"modified":"2018-04-19T20:07:47","modified_gmt":"2018-04-19T20:07:47","slug":"family-retreat-a-parents-perspective","status":"publish","type":"post","link":"https:\/\/njcts.org\/tsparents\/family-retreat-a-parents-perspective\/","title":{"rendered":"Family Retreat – A Parent’s Perspective"},"content":{"rendered":"
About 6 years ago, a few months after our son was diagnosed with TS, we learned about the NJCTS Family Retreat (Camp Bernie).\u00a0 It sounded like fun but we did not know what to expect.\u00a0 We are not much of an outdoors family, especially when it comes to camping.\u00a0 So we were a little unsure of whether we wanted to attend and what to expect.<\/p>\n
We are so glad we decided to try it.\u00a0 For us it really did turn out to be the best weekend of the year, and we have gone back every year since then.\u00a0 It would have been a huge mistake if we did not give it a try so we thought it best to share our experiences with others who may also be debating whether they want to go.\u00a0\u00a0 And we wanted to answer some of the same questions that we had that first year when deciding if we wanted to go.<\/p>\n
The best way to describe why we enjoyed camp is to detail the benefits for each member of our family:<\/p>\n
Some key points:<\/p>\n
When you arrive: you go to this central area where there is a parking lot and get your packet.\u00a0 In that packet is all the information for your weekend.\u00a0 The whole weekend is very well organized but it is also flexible based on what works for your family.\u00a0 You are assigned to a group and each group is given specific times for activities.\u00a0 It also gives a schedule of all the options such as seminars and discussion panels that you can choose to attend.\u00a0 And it gives your cabin name and answers other questions.<\/p>\n
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Activities:<\/strong><\/p>\n Fun camp type activities:<\/strong> There are plenty of things to do and they are optional. Usual activities include a lake where you can do canoe on the lake, a swimming pool, archery, ropes course, and similar activities.\u00a0 Each is run by dedicated Camp Bernie personnel who are there to help and assist.\u00a0 Aside from the pre-planned activities, there is also a basketball court with balls which is popular, tetherball, and arts and crafts such as rock painting, etc.\u00a0 We have always enjoyed all of these activities.<\/p>\n NJCTS group learning activities:<\/strong> In the past this has included a mentor panel where children and young adults with TS sit at a table, talk about themselves and then open up to any questions the group wants to ask.\u00a0 It is very informal and something we have found extremely educational. Talent show:<\/strong> probably one of the favorite parts for us, you can simply attend and watch others perform a talent, or you can sign up to join in.\u00a0 Talents include singing a song, playing an instrument, a dance, many different things.\u00a0 It is very casual and is a great time for all.<\/p>\n Educational seminars and talks:<\/strong> In the past there have been a neurologist, a psychologist, members of the Rutgers TS program, and also a parent panel. We have learned a lot at these and all offer you the chance to ask questions.<\/p>\n <\/p>\n The best way to sum up the weekend is this:\u00a0 Last year there were not enough people who had signed up early on, so it was cancelled.\u00a0 My family looks forward to it and were really disappointed about it.\u00a0 We figured our son with TS would be the most upset out of all of us.\u00a0 But when I informed my family that it wasn\u2019t going to happen, our 11 year old daughter (who does not have TS) was the one who was the most upset.\u00a0 When I asked her why she was more upset than her brother she said because she has so much fun there and looks forward to it all year.<\/p>\n Adam Regan<\/em><\/p>\n <\/p>\n <\/p>\n <\/p>\n <\/p>\n <\/p>\n <\/p>\n <\/p>\n <\/p>\n If you are interested in the NJCTS 2018 Family Retreat, visit www.njcts.org\/family<\/a> to learn more and register.<\/strong><\/p>\n<\/p>\n
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