{"id":481,"date":"2012-01-26T10:02:47","date_gmt":"2012-01-26T15:02:47","guid":{"rendered":"https:\/\/njcts.org\/tsparents\/?p=481"},"modified":"2012-01-26T10:02:47","modified_gmt":"2012-01-26T15:02:47","slug":"daughters-my-life-with-tourette-syndrome-presentation-wows-parents-crowd","status":"publish","type":"post","link":"https:\/\/njcts.org\/tsparents\/daughters-my-life-with-tourette-syndrome-presentation-wows-parents-crowd\/","title":{"rendered":"Daughter’s “My Life With Tourette Syndrome” presentation wows parents, crowd"},"content":{"rendered":"
As part of her Bat Mitzvah community service project (to support the New Jersey Center for Tourette Syndrome<\/a><\/strong>), I was proud that she even wanted to do the talk.\u00a0 I thought that no matter what she did, the room would be filled with love and support for her (plus a little education for anyone who didn’t know about TS), and that she would feel very proud of herself for having done something that would scare most adults!\u00a0 I thought that was exciting enough.<\/p>\n While I knew that she would do a great job, I was unprepared for how spectacularly she presented her material.\u00a0 She wrote a speech with honesty, humor and education.\u00a0 She practiced it faithfully, took some suggestions from us and from materials provided by NJCTS, and ultimately came up with a “multimedia” presentation.<\/p>\n In addition to her speech, she chose to show a clip from the HBO documentary “I Have Tourette’s, But Tourette’s Doesn’t Have Me”<\/a><\/strong>;\u00a0to show pictures from our raffle trip to meet Tim Howard<\/a><\/strong>;\u00a0to have the crowd do an activity where they were given “tics” to deal with; and to have a display table of T-shirts, hats and pamphlets from NJCTS, as well as books and DVDs relating to TS and OCD.<\/p>\n<\/a>This past week, our family, friends and community were treated to an amazing display of courage, power and advocacy.\u00a0 Our 12-year-old daughter, Tess, who was diagnosed with Tourette Syndrome when she was 5, gave a presentation entitled “My Life With Tourette Syndrome.” The talk took place at\u00a0the Religious School of our synagogue (Congregation Kehilat Shalom in Belle Mead, N.J.) and it was attended by more than 90 people.<\/p>\n