I wrote this about 10 years ago, shortly after my son was diagnosed. We’ve come a long way since then. At 17, he barely tics, the RAGE is gone and he’s doing well in school. I hope that this shows that you are not alone in the struggles that you face. Know that there is light at the end of the tunnel….<\/p>\n
TS
\n“Why do you keep on clearing your throat? Are you feeling sick?” I would say.
\nAnd so, it continued…again and again.
\nDay after day after day.<\/p>\n
Then, one day it stopped…and then you began
\nshrugging and jerking your head.
\nAnd then, you started hurting yourself
\nand picking your nails ’til they bled.<\/p>\n
The blinking is hard; it’s like a strobe light
\nis flashing in front of your eyes.
\nI can’t seem to calm you, when you get upset,
\nno matter how hard I try.<\/p>\n
Mothers all want to take care of their kids
\nand give what they need everyday…
\nto kiss all their boo-boos, whenever their hurt,
\nand make all the pain go away.<\/p>\n
Oh, how I wish I could magically fix
\nall the things that are so hard for you.
\nI’m so sorry to say, my sweet special child,
\nthat is something I just cannot do.<\/p>\n
But, I’ll always be here, whatever you need.
\nI’ll give comfort when your poor heart aches.
\nAnd I promise I’ll always give you my best,
\nthough I know I will make some mistakes.<\/p>\n
Remember, we’re in this together
\nand through the years, we both will grow.
\nI know you’ll do fine, my dear child…
\nand I love you, more than you know.<\/p>\n