NOTE: Please welcome Tourettes Action, an advocacy group based in the United Kingdom, to TSParentsOnline. Below is some information they have for parents to give their children who struggle with TS.
Most people with Tourette Syndrome (TS) are diagnosed as children or teenagers. Children generally start to tic between ages five and seven, but they can start as young as three years old.
There is a lot of information about TS out there, but Tourettes Action knows that because it is a complicated condition a lot of the material can be quite difficult to read, so we have put together information specifically for young people.
Tourette Syndrome – the simple truth
Tourettes Action asked young people what questions they wanted answered about TS, and we’ve attempted to answer them here, including:
- What is TS?
- Will I swear?
- What might help my tics
- Should I tell people in school that I have TS?
- Can I do the same things as my friends, like going to the cinema?
- Will anybody want to go out with me?
- Will I be able to get a job?
- Is there anybody famous with TS?
You can read our answers to all your questions in our guide for young people, Tourette Syndrome – the simple truth.
Other TA information for young people
- Facebook – follow Tourettes Action to find out all the latest news about TS and upcoming events
- Twitter – follow us for the latest news on TS
- TA forum – share your experiences with other people your age with TS
- YouTube – visit our YouTube page to watch videos from fellow ticcers talking about what it is like to have TS
- Support in school – information for you and your parents to get the best support in school, university and further education
Other information for young people with TS
- Tourette Syndrome Canada – has a good collection of videos about TS
- Tourettes Hero – a blog from Jess Thom about living with TS
Books about TS for young people
- Why do you do that? A book about Tourette Syndrome for children and young people – Uttom Chowdhury & Mary Robertson
- A family’s guide to Tourette Syndrome – (eds) Walkup, Mink & McNaught
You’ll find more books and information in our Resources Library.