Awareness. Acceptance. Action. Advocacy. All needed when it comes to informing people about Tourette Syndrome at the national, regional, state and local level. Our Facebook page (give us a “like”! :) ) is dedicated toward these very things, especially when it comes to supporting the proposed federal Tourette Syndrome legislation.
We are pleased to see that others have taken up this crusade on this blog, and we ask that if you’re living in the United States and reading this blog right now that you, too, support this legislation. Doing so is easy. All you have to do is go to https://www.popvox.com/bills/us/113/hr146 and click on “support” and follow two simple steps that will take you all of 30 seconds.
By doing that, you’re letting your Congressional representative know that Tourette Syndrome is important to you and that he or she should jump on board with getting this legislation through Congress. Unless you let your Congressperson know about this bill, they likely will never find out. There are just too many bills out there, many of which get ignored and never ever see the light of day.
Don’t let that happen to this landmark Tourette Syndrome bill. We need to get it passed. So join the scores of people who already have showed their support. Here are a few of them, and we’ll be bringing a few more testimonials to you as time goes by.
We can’t stress enough how important this is and how we need you to get this done. So what are you waiting for? Click here and click support today!
Tourette Syndrome legislation is important in Pennsylvania:
TESmith in Pennsylvania’s 4th District
I support H.R. 146 (“To amend the Public Health Service Act to provide for the expansion, intensification, and coordination”) because…I have a 14 year old daughter suffers from this. We only learned this is what she has, two years ago. I have learned a great deal since, much more work is needed on all levels.
great idea, waste of time. it’ll never make it through the government. they’re arent enough people who care anyway. its sad.
You must be the same anonymous from the other post. It’s truly sad that there are people out there who would frequent a TS blog and feel this way. If there is even a shred of apathy in the TS community, this bill will never see the light of day and a lot of the status quo we see — misinformation, bullying, no cure, etc. — will continue.
I just saw a tweet from NJCTS that states that only 146 people support this? Is that for real? There really IS a reason why so many people in this country laugh at TS … it’s because those who are affected by it don’t stand up for themselves and their loved ones in a meaningful way. Sharing pictures on Facebook is nice, but it doesn’t accomplish meaningful awareness. We don’t need to make each other aware of TS. We need to make those who DON’T have it and AREN’T affected by it aware. And we need to make those who make the decisions in this country aware of it. Wake up people. This is probably the most important thing out there to any of us who have a child with TS or know someone who does.
JP, it’s up to 263 now, but that’s still paltry — not even a drop in the ocean of what needs to happen to make this a reality.