Here is a post from a mother who wishes to remain anonymous. She could really use help, though, so please consider commenting with a reply if you are reading this. Thank you!
I’ve asked questions before, and it always helps to get input from others who have been there, done that. My son is 13 and has Tourette’s. He has coprolalia as well. Unfortunately, when he gets very excited — either very happy or very mad — the words fly.
He has certain phrases that he says over and over again. It’s really really hard to listen to on a daily basis, and much of it I have tuned out. He is homeschooled, but the problem is with friends. He only has one friend in the neighborhood — most of the other friends have gone by the wayside over the years.
My son is much younger emotionally, and his best friend is only 8 years old. Today his mom told me that he can no longer have his son play with mine because of the horrifying thing my son said within earshot of her daughter (who is very sensitive and doesn’t get it).
The mom “gets it,” but she is afraid that her ex-husband will hear about what was said (from the daughter) and take her back to court for custody because she is letting her children be around someone who is saying things that could be seen as threatening.
I don’t want to say exactly what was said — it wasn’t good — but it’s a phrase that is in my son’s repertoire. We have tried word substitution, but it hasn’t worked. I have tried explaining why it isn’t a good idea to say certain phrases, to no avail. Has anyone tried any form of behavior modification that has worked for the worst of the language?
I guess I’m worried as he is getting older that what if someone, such as a police officer, hears him say something that they consider threatening … even though he has Tourette’s, can they arrest him? What happens in those cases? He is currently unmedicated as nothing has worked so far to make the tics any better.
Thanks for any advice