Hi everyone, I just wanted to share a couple of little notes that show how important it is to support H.R. 146, the Collaborative Academic Research Efforts for Tourette Syndrome Act of 2013. I posted the following short letter to the POPVOX website on January 17:
Dear Rep. Ami Bera:
Hello, I am the Mother of a boy who has Tourette. It took many years to get the correct diagnosis and support that my son needed. Many years of struggles and challenges because our society does not understand how debilitating ADHD is. Tourette is not just tics, and it is the common disorders that accompany tics that make up TS (Tourette). Though only one disorder is needed in combination with tics, the majority suffer from the daily challenges of multiple disorders. One disorder is absolutely a disability depending on the severity. The ignorance when it comes to TS is overwhelming because TS differs with each individual. My teen son has daily struggles, especially executive. It is crucial to have a support system in place to thrive in society. TS is not a mental disease but it can be if the disorders are not treated. Please consider my concerns for my son and millions who have TS by joining me in support of H.R. 146: Collaborative Academic Research Efforts for Tourette Syndrome Act of 2013 because it is a necessity where everyone benefits. To ignore the support and funding needed on a global scale would be gravely selfish.
The very next day, the following message appeared underneath it on POPVOX:
This letter was delivered to Rep. Ami Bera [D, CA-7] on 01/18/13.
See? Your letters to Congress ARE heard, and our representatives ARE interested in hearing what we have to say about Tourette Syndrome. The more letters we send in, the more likely they are to co-sponsor this bill and get it sent into the House of Representatives for a vote. Log on to POPVOX today and share your opinion!