I’ve read so much on this site and I’m grateful to the New Jersey folk for being some of best advocates for Tourette Syndrome out there!
I’ve said it before, so I promise this will be the last time, but my son’s case of TS is more on the mild side. I don’t say this to brag — because believe me, we have our challenges like any other kid with tics — but I state it because I hope my “stay-positive” posts don’t come off insensitive to those of you out there struggling with more extreme cases.
Bottom line, I’ve been thinking about what I want to contribute to this blog over the past two weeks. I’ve realized that my theme is going to be hope despite a scary diagnosis. I’m going to remind everyone that while yes, sometimes people do have intense cases of tics, but many times the tics stay moderate to mild. In cases like the second, it’s important to remain focused on what is really going on, not the fear of what “could” be.
That said, I will continue to chat about my son Stink’s journey. I will talk about my own personal journey as a writer and a mother. I will sometimes talk about my marriage and how my husband and I support (and disagree) over treatment for Stink.
But most of all, I will remind you all to live in the present. I’ll encourage you all, like the motto of my website, to accept the tics you cannot change, change the tics you can, and have the wisdom to know the difference.
I’d love to hear some feedback. What are you most interested in discussing? Personally, I’m interested in chatting about nondrug treatments this week. We just started taking Stink to acupuncture, and so far we can see a decrease in hyperactivity and tics already. Anyone else tried that?
You can find me writing almost daily about tics at my new website, Happily Ticked Off. Until later, hug that ticker today!
@Susan – Is Ally doing cognitive behavior therapy for her anxiety?
Just read your post. I too am at the same stage in my daughter’s symptoms. At the moment they are very mild and feeling very lucky but also sometimes catch myself thinking when will it start again. I try not to think that it could all change in a blink of an eye. It definitely is so important to stay focused on the present. One thing that I have learned through is if the tics do increase that we can overcome it. At the moment Ally is not on any meds for her tics. She is still on meds for her anxiety but hopefully with the help of the great grad students at Rutgers University she can some day soon stop taking that too.