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Author: MarilynCDW

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Guest blogger: Sophia and her TS

Posted on February 26, 2015 by MarilynCDW

Sophia talks to Tourettes Action about her experiences of living with TS and what it means to her. For me, Tourette’s made its appearance a little later than usual. I was 16 and had just been diagnosed with autism spectrum… Continue Reading →

Guest Bloggers Acceptance, Anxiety, Autism, Coprolalia, Depression, OCD, Stigma, Support, Tics, Tourettes Action
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Guest blogger: “I swear it isn’t true”

Posted on December 11, 2014 by MarilynCDW

EDITOR’S NOTE: This post was shared by Tourettes Action on its Facebook page. It originally comes from the blog of guest blogger Adrian. For nearly three years I’ve written a blog about running and mental health, and in particularly the… Continue Reading →

Guest Bloggers Anxiety, Blogs, Books, Coprolalia, Depression, Focus, Links, OCD, Running, Sleep, Stigma, Tim Howard, Tourettes Action
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Tics and speech difficulties in people with TS

Posted on November 19, 2014 by MarilynCDW

Tics are an important feature of Tourette Syndrome (TS), whilst impaired fluency of speech is the dominant overt feature of stuttering. To establish any relationship, we looked at tics in people with TS and people who stutter and have found… Continue Reading →

Research Adult TS, Research, Speech, Tics, Tourettes Action
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The experiences of diagnosis in adults with Tourette Syndrome

Posted on November 12, 2014 by MarilynCDW

TS is a clinical diagnosis, meaning that there is not a specific test for the disorder, it has been noted to be difficult to diagnose with research showing delays in the diagnosis of TS (Wand et al., 1992; Freeman et… Continue Reading →

Research Adult TS, Behavior, Coprolalia, Cure, Diagnosis, Doctors, Research, Stigma, Tics, Tourettes Action
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European Multicentre Tics in Children Study

Posted on September 6, 2014 by MarilynCDW

A new study will explore the onset and worsening of tics and obsessive-compulsive symptoms in children and adolescents. The study, underway at TANDeM (Evelina Children’s Hospital), University College London Hospital & Great Ormond Street Hospital, will explore the onset and worsening… Continue Reading →

Research Anxiety, Children, PANDAS, Research, Stress, Tics
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International TS Conference focuses on importance of research

Posted on May 16, 2014 by MarilynCDW

Recently, Tourettes Action’s research manager attended the 2014 Annual ESSTS meeting and COST International Conference for Tourette Syndrome. This took place in April at the Pitié-Salpêtrière Hospital in Paris, home to Jean-Martin Charcot and one of his most famous students,… Continue Reading →

Research Awareness, Deep Brain Stimulation, Neuroscience, Research, Tourettes Action
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Support for young people

Posted on August 7, 2013 by MarilynCDW

NOTE: Please welcome Tourettes Action, an advocacy group based in the United Kingdom, to TSParentsOnline. Below is some information they have for parents to give their children who struggle with TS. Most people with Tourette Syndrome (TS) are diagnosed as… Continue Reading →

Links Facebook, Links, Questions, Resources, School, Support, Tourette Canada, Tourettes Action, Touretteshero, Twitter

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