I’ve decided to start blogging/journaling my sons Tourette’s journey as a means of therapy for myself and to find others in the same boat.
My sons first tics became apparent as soon as he started school, the transition from the freedom of nursery to the structure of the classroom triggered a number of motor tics and at one stage parents thought his involuntary leg movement was him trying to kick others.
We monitored the condition over the years and ensured he had a daily magnesium supplement. Dealt with the school issues of him calling out and being impulsive and fended off the shouts that he has ADHD/anxiety and is just a down right attention seeker!!
Fast forward another 2 years and we were given the TS diagnosis but as a mother who didn’t want to label her child we continued to tell him he just has tics.
Things have taken a turn for the worse recently, almost 13 years, hormones and exams plus a little bullying seem to be a catalyst for the worst tics all coming at once and hence the start of another journey to help control things.
We have had an independent behaviour expert visit the school (guess what? He’s not naughty just a boy with Tourette’s not being handled correctly) started alternative therapy including acupuncture and chiropractic treatment and as of today dietary changes.
It’s definitely a learning curve for us all and through my blog and chatting to others I hope that we can manage the condition (hey maybe even cure it??)
Emma B (UK)