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Teaching the teachers about TS

We had a 504 meeting the second week of school. It was both of us, the psychologist, the counselor, all 3 teachers, and the principal joined us midway through the meeting. We tweaked his 504 and discussed a lot of… Continue Reading

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Become more supportive of advocacy efforts

Awareness. Acceptance. Action. Advocacy. All needed when it comes to informing people about Tourette Syndrome at the national, regional, state and local level. Our Facebook page (give us a “like”! ) is dedicated toward these very things, especially when it… Continue Reading

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One small change and his world falls apart

Jacob’s teachers laughed at me last year when I said that even one day with a substitute teacher would throw off his entire week. They thought I was crazy, I guess. Today was one of those days that his world… Continue Reading

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We just want our son to be happy

When you find out you’re pregnant, you are the best parent you will ever be. Everything you do will be perfect, your child will be well behaved with good manners, an excellent student, an athlete, president of the student council,… Continue Reading

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Poetry: “Tourettes In Slow Motion”

Wishing to be invisible, I freeze as I sit. Freeze into a place, a place I don’t fit. I tense, I try to fight this urge, Like fighting against a power surge. The build up so great, nothing can stop,… Continue Reading

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My story: 2 of my 3 boys have TS

TS is a complex disorder that can cross over with others! I have two out of 3 boys with Tourette. My oldest is 15 years old and started with tics at 3. He was misdiagnosed by the children’s hospital in… Continue Reading

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What Makes Us Tic awareness project

Tourette Syndrome needs more awareness. Bella has made a great documentary to help raise more awareness, but she needs a little help to improve her documentary and get it out where it will be seen. It doesn’t take much to… Continue Reading

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Replace fear with faith

I speak to so many of you worried mamas offline. I was once like you — scared about the future, dreaming of fearful “what-if” scenarios, wondering if my kid jumped up and down in excitement over a surprise Disneyland trip… Continue Reading

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“Perfect” is perfect!

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Why is this so hard to understand?

One of my pet peeves. I try to acknowledge the fact that I have TS because my tics are obvious and instead of getting an “Oh, OK” or some other brief acknowledgement of understanding and move on, I get people… Continue Reading