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Advocacy and awareness: Necessities and parts of daily life, part 2

This is the continuation from my post yesterday. Read that one first, if you haven’t yet! 🙂 My son had complex tics when he was diagnosed with Tourette Syndrome, but those tics subsided once life stresses were reduced and we… Continue Reading

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Keeping busy with Tourette

I am the mother of a wonderful, smart, sensitive girl who is also one of the strongest and most resilient people I know. She has Tourette Syndrome. It has been an emotional morning finding this site and reading so many… Continue Reading

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Advocacy and awareness: Necessities and parts of daily life, part 1

I don’t claim to have life as a mother figured out, especially having a child with neurological challenges. I am guessing other mothers have more patience than I do, but I am certainly not giving in or being too tired… Continue Reading

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Finding the right school

When Stink was first diagnosed with Tourette Syndrome, I was still holding onto hope that he would attend the Catholic school of my youth. He would play sports and go through the Sacraments and be just crafty enough to be… Continue Reading

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Don’t let a great opportunity pass us all by

Our son, Ethan, turned 12 last week in a residential treatment facility more than 1,000 miles from home.  It’s a hospital in Wisconsin specializing in the treatment of kids with tic disorders and debilitating obsessive compulsive disorder, resistant to the… Continue Reading

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Please offer your advice to a mother in need

I want to repost an e-mail I received from a reader who is going through a hard time. If someone feels moved to comment in support of her, that would be awesome. More to follow! Hi Andrea! I cannot tell… Continue Reading

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Support HR 146 — proposed Tourette Syndrome legislation!!!

As a scientist and father of 2 kids with Tourette Syndrome, I’m often pretty frustrated with the state of our understanding of the causes of Tourette and its frequency within the general population, and with the limited treatment options available.… Continue Reading

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Tic with joy

One of my resolutions this year is to write more, both at this blog to support other moms and for my career. With that in mind, I reached out to my local papers with a pitch I had. They both… Continue Reading

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Tourette awareness is a cure ignorance

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Study: Prevalence of tics among South American schoolchildren

According to a new study, “Prevalence of Tics Among 6- to 12-Year-Old Schoolchildren in the Itagu Municipality, Colombia, in 2010,” in the Journal of Child Neurology, tics are the most frequent movement disorder in children, and they are most prevalent… Continue Reading