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Advocacy and awareness: Necessities and parts of daily life, part 2

This is the continuation from my post yesterday. Read that one first, if you haven’t yet! :) My son had complex tics when he was diagnosed with Tourette Syndrome, but those tics subsided once life stresses were reduced and we… Continue Reading

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Advocacy and awareness: Necessities and parts of daily life, part 1

I don’t claim to have life as a mother figured out, especially having a child with neurological challenges. I am guessing other mothers have more patience than I do, but I am certainly not giving in or being too tired… Continue Reading

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Don’t let a great opportunity pass us all by

Our son, Ethan, turned 12 last week in a residential treatment facility more than 1,000 miles from home.  It’s a hospital in Wisconsin specializing in the treatment of kids with tic disorders and debilitating obsessive compulsive disorder, resistant to the… Continue Reading

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Support HR 146 — proposed Tourette Syndrome legislation!!!

As a scientist and father of 2 kids with Tourette Syndrome, I’m often pretty frustrated with the state of our understanding of the causes of Tourette and its frequency within the general population, and with the limited treatment options available.… Continue Reading