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Connecting with other parents is vital with Tourette Syndrome

Hi!  I never thought about participating on the blog before, but ran across it today and thought that it sounded like a good idea. As a parent of a 17-year-old boy with Tourette Syndrome, my experiences over the years might serve to help parents deal with a new diagnosis.  We have been through much, but survived.  Our son is doing well now.

Over the years, the New Jersey Center for Tourette Syndrome has offered a lifeline to many. We have taken advantage of the wonderful family retreat weekends at Camp Bernie and found that networking with other parents there has proved a valuable resource.  We found our son’s doctor through another parent at camp.

Thank you for providing a forum through which parents can connect and be comforted. I will look forward to participating.

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  1. My son is 14. We live in Southern Ocean County. Is there a network down here? We have no contact with others with Tourettes. It would be nice to show my son that he’s not alone.

    • Hi Debra, thanks for letting us know! We recommend that you call NJ Center for Tourette Syndrome ASAP at 908-575-7350 and ask for Leanne. She will be able to connect you with families in your area, as well as other programs, services and events!

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