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Week 4 on Intuniv: Speeding up to slow down

Had our appointment today with the great Dr. McCracken at UCLA. Stink is still thriving on meds. We are going to push the meds up to three a day instead of just two. “Why” I asked. He’s doing so well.… Continue Reading

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There is no “normal”

From an early age, I struggled with my self-esteem. My high school years were filled with worrying constantly about what others thought of me and doing my best to fit in. At a high school reunion a few years back,… Continue Reading

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Words are more powerful than sticks AND stones

Sticks and stones can break my bones, but words can never harm me. If only that were true.  Being a word girl, I know the power that a word can have.  One word can change your life for better or… Continue Reading

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Week 2 on Intuniv: So far, so good

I’m hesitant to type this, for whenever I say, “Tics are looking good!” two minutes later my kid is honking like a seal and spinning like an anorexic mama on a bike at the gym. But so far, the Intuniv doesn’t… Continue Reading

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At Camp Bernie, there’s no such thing as “bad parenting”

The thing about eating out in public with a child who has Tourette Syndrome and its associated disorders is that it gets a little dicey.  Ok, sometimes a LOT dicey. The first hurdle of the evening when going out to… Continue Reading

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A cure for ignorance

This photo is one of mine, and the words are from a newly diagnosed young man named Alan, who is coming to terms with having Tourette Syndrome. SHARE THIS POST

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Camp Bernie: The place where everyone knows your name and what you’re going through

It was eight years ago this weekend that we first met another child with Tourette Syndrome, I thought as we drove up the road again toward YMCA Camp Bernie for the New Jersey Center for Tourette Syndrome Family Retreat Weekend.… Continue Reading

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Thankfully, my son insisted we go to Camp Bernie!

I have to admit, my 11-year-old gets all the credit for making sure our family made our first New Jersey Center for Tourette Syndrome Family Retreat Weekend at YMCA Camp Bernie. From the moment he heard about the camp, he… Continue Reading

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Stepping out of our comfort zone for his comfort

I will be the first to admit it, I am not an “outdoorsy” person. To add to that, my family isnt either. In this day and age, my kids are happy staying indoors playing with their iPods, laptops, videos or… Continue Reading

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Help from mother/son combo made family retreat weekend priceless

Ethan Lederman, at center holding a plastic cup, was wide-eyed with wonder during the habitat nature walk at the 8th annual New Jersey Center for Tourette Syndrome Family Retreat Weekend at YMCA Camp Bernie. Our family looked forward all year… Continue Reading