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The libel of labels

From the moment we are born, there are labels. Good baby. Easy baby. Difficult baby. Fussy baby. It seems we are destined to a life of words meant to define us — if we let them. In my life, I’ve… Continue Reading

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Three-part National Geographic video on Tourette Syndrome

Here’s an exclusive look at my Tourette Syndrome, as told in the three-part National Geographic series “Extreme Lives, Strange Behaviours” that will air on TV beginning June 24 but are on YouTube now. I hope you enjoy them and learn… Continue Reading

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20 facts about Tourette Syndrome you may or may not know

In honor of Tourette Syndrome Awareness month, here are 20 facts about Tourette Syndrome courtesy of the Iowa Tourette Syndrome Association group: One in 100 children have some form of Tourette Syndrome. That is the same amount as children with… Continue Reading

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Sometimes ignorance has nothing to do with bliss

My husband recently shared with me a conversation that he had with a person who posted a comment on our first Tourette’s interview. More often than not, the comments are positive and supportive. However, there will always be ignorant people… Continue Reading

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No summer camp for kids with TS … unless you have an “aid”

I called a camp for summer. I was thinking about enrolling Stink and Pip in musical theatre. I mentioned that Stink has Tourette Syndrome. Their response was that it’s fine — if he comes with an aid. “An aid? He doesn’t… Continue Reading

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Tourette Syndrome Awareness Month: One for the ticcer

This post is for my son, Jacob, who happens to have Tourette Syndrome, and he happens to be one of my greatest teachers. May 15-June 15 is National Tourette Syndrome Awareness Month. Pass this blog along to one person and… Continue Reading

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If you haven’t signed the Tourette Syndrome petition … DO IT NOW!

There are two ways you can help your child be amazing despite a few tics and twitches (or even major ones): Concentrate on their gifts, not their weaknesses! Be funny! Laugh! Fake it til you make it! (Lots of exclamations… Continue Reading

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Letters to the U.S. Senate about Tourette Syndrome bill ARE read

Hi everyone, I just wanted to share a little note that shows how important it is to support S. 2321, the Collaborative Academic Research Efforts for Tourette Syndrome Act of 2011. I posted the following short letter to the POPVOX website… Continue Reading

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May 15-June 15 is Tourette Syndrome Awareness Month

Please join TSParentsOnline, the New Jersey Center for Tourette Syndrome, the Tourette Syndrome Association and the hundreds of thousands of Americans with TS in celebrating Tourette Syndrome Awareness Month, May 15 to June 15. Tourette Syndrome is a misdiagnosed, misunderstood neurological… Continue Reading

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Making a difference in people’s lives is better than getting thank-you’s

Our daughter, Tess, recently spoke at a “Celebrate Uniqueness” Day in South Brunswick, and she just received a PILE of thank-you cards with sentiments such as: “I didn’t realize people with these type of disabilities suffered a lot from other people… Continue Reading