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2012 New Jersey Youth Ambassador had a blast in D.C.

My daughter Sarah and I were in Washington, D.C., from April 18-19 for the National Tourette Syndrome Association Youth Ambassador
 Leadership Program. Sarah was chosen as the New Jersey TSA Youth Ambassador by the New Jersey Center for Tourette Syndrome.… Continue Reading

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UCLA study on Asperger’s and focus — Intuniv

It’s been awhile since I wrote here. I’ve been in a state of confusion and a bit vulnerable, but now I’m ready to spill my guts! As I mentioned in my last post, I wasn’t ready to put Stink on… Continue Reading

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Tourette Syndrome Awareness Week: Graduate students get a dose of the reality of TS

TracyL talked about the following with first- and  second-year graduate students at Rutgers University’s Graduate School of Applied and Professional Psychology as part of the New Jersey Center for Tourette Syndrome’s first annual Tourette Syndrome Awareness Week. I have an… Continue Reading

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Kudos to NJCTS advocacy efforts

Thanks so much to the NJCTS community for the invitation to guest blog. As I mentioned on my Tumblr page last week, I was very impressed by your organization’s advocacy efforts around H.R. 3760. The press release praising Congressman Rush Holt… Continue Reading

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Rage attacks can be a challenge

“Get me nice parents now! I’ve had enough of you two! Play a game with me or leave the house! Go die in a hole! I don’t want you to live here anymore!” My crime that unleashed this tirade from… Continue Reading

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Have you seen what the teens are up to?!

Chances are, if you’re reading this, you have a child or teenager with Tourette Syndrome. But did you know that there is a blog just for teens for TS? There is! It’s called Teens4TS, and right now, we have teenagers… Continue Reading

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THE GREAT WALL OF TICS — Share your tics with the world!

Just days before this blog was launched, the Tourette Syndrome Foundation of Canada started a website called The Great Wall of Tics — a place for anyone to post about the tics that have resulted from their Tourette Syndrome. We have received permission to… Continue Reading

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Pediatric residents learn more about Tourette Syndrome from teens

Drew Friedrich and Sarah Ethridge had a lot to say at the New Jersey Center for Tourette Syndrome’s patient-centered training April 9 at Goryeb Children’s Hospital in Morristown, N.J. And the pediatric residents to whom they spoke absorbed every word… Continue Reading

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Letters to Congress about Tourette Syndrome bill ARE read

Hi everyone, I just wanted to share a little note that shows how important it is to support H.R. 3760, the Collaborative Academic Research Efforts for Tourette Syndrome Act of 2011. I posted the following short letter to the POPVOX website… Continue Reading

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Daily Tourette Syndrome Links: Wednesday, April 4

Here are the past few days’ Tourette Syndrome-related links from websites all over the Internet. This is just another way TSParentsOnline hopes to help the parents of the TS community. Also, we are looking for more parent contributions. We would love to hear… Continue Reading