{"id":780,"date":"2012-05-21T08:00:20","date_gmt":"2012-05-21T12:00:20","guid":{"rendered":"https:\/\/njcts.org\/teens4ts\/?p=780"},"modified":"2012-05-21T08:00:20","modified_gmt":"2012-05-21T12:00:20","slug":"letters-to-congress-about-tourette-syndrome-bill-are-read","status":"publish","type":"post","link":"https:\/\/njcts.org\/teens4ts\/letters-to-congress-about-tourette-syndrome-bill-are-read\/","title":{"rendered":"Letters to Congress about Tourette Syndrome bill ARE read"},"content":{"rendered":"

Hi everyone, I just wanted to share a little note that shows how important it is to support\u00a0H.R. 3760<\/a><\/strong>, the\u00a0Collaborative Academic Research Efforts for Tourette Syndrome Act of 2011. I posted the following short letter to the POPVOX website on May 14:<\/p>\n

Dear Rep. Allyson Schwartz:<\/strong><\/p>\n

I am an artist with Tourette Syndrome, and I have started a performance troupe that takes the tics and twitches of TS and uses them as a foundation for choreography. In this way, we are challenging people’s preconceived notions about what it means to have a disability. Additionally, we incorporate a neuroscientist during our presentations who gives a scientific lecture on Tourette. We are combining art with science to create a powerful message. I believe this work is important and needs to be shared with as many people as possible. We need support from people like you so there can be funding for projects like these. This is especially critical to the youth who suffer with TS because they are bullied and misunderstood. My performance project is one that educates and inspires tolerance and appreciation for those who are different. Our hope is that you find our work compelling and worthy of further exploration and support. Thank you. You can find us at www.bandofartists.org<\/a><\/strong>.<\/p>\n

SutieM<\/p>\n

<\/strong>Pennsylvania’s 13th District<\/strong><\/p><\/blockquote>\n

The very next day, the following message appeared underneath it on POPVOX:<\/p>\n

This letter was delivered to Rep. Allyson Schwartz [D, PA-13] on 5\/15\/12.<\/strong><\/p><\/blockquote>\n

See? Your letters to Congress ARE heard, and our representatives ARE interested in hearing what we have to say about Tourette Syndrome. The more letters we send in, the more likely they are to co-sponsor this bill and get it sent into the House of Representatives for a vote. Log on to\u00a0POPVOX<\/strong>\u00a0<\/a>today and share your opinion!<\/p>\n","protected":false},"excerpt":{"rendered":"

Hi everyone, I just wanted to share a little note that shows how important it is to support\u00a0H.R. 3760, the\u00a0Collaborative Academic Research Efforts for Tourette Syndrome Act of 2011. 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