{"id":5638,"date":"2022-07-15T17:22:12","date_gmt":"2022-07-15T17:22:12","guid":{"rendered":"https:\/\/njcts.org\/teens4ts\/?p=5638"},"modified":"2022-08-03T17:40:30","modified_gmt":"2022-08-03T17:40:30","slug":"the-rise-of-clout-for-disabilities-online","status":"publish","type":"post","link":"https:\/\/njcts.org\/teens4ts\/the-rise-of-clout-for-disabilities-online\/","title":{"rendered":"The Rise of Clout for Disabilities Online"},"content":{"rendered":"\n

By Paige Kowalski, NJCTS Youth Advocate<\/em><\/strong><\/p>\n\n\n\n

As TikTok becomes a more and more popular content creation app, it is very common to see viral users all over your \u201cfor you page.\u201d In this day and age, being paid for acting as a creator is a high paying job that allows for money on simple videos that last only a few seconds. Becoming a creator is harder than it seems, going against the algorithm is an uphill battle that many are constantly fighting. Fitting in with the vast number of videos that can be seen on each individual\u2019s for you page is a hard feat, but for many it can be easy enough as faking a disability for views.<\/p>\n\n\n\n

Seeing teenagers and even adults faking Tourette Syndrome online is an exhausting experience as someone with diagnosed TS. To sift through so many videos and see the blatant ignorance of someone with \u201cTourette Syndrome\u201d who is unable to really provide any information about their diagnosis and experience shows a great deal of proof against their case. For people like me who have been heavily involved in advocacy online and in person, it is clear to see who is truly diagnosed with Tourette and who is using a disability as a front to watch their views climb.<\/p>\n\n\n\n

This phenomenon can be seen with many other disabilities and diagnosis as well, especially on TikTok. It can be disheartening for those who are truly struggling and putting their stories out there to benefit the public when there are people spreading false information and faking their tics\/other diagnosis. Limiting the voices of the people who can truly raise awareness for this misunderstood disorder is a harmful thing to do, and to witness this along with so many others who have TS puts us in a difficult position.<\/p>\n\n\n\n

To publicly discredit the \u201cdiagnosis\u201d of these people can lead to an even more problematic issue than their misinformation, but to allow them to spread false information like \u201ctics are suppressed which is why I don\u2019t do them anymore\u201d, or even the wild claim of \u201cMy doctor said it just went away and I won\u2019t have to deal with it again\u201d is equally as harmful. When these claims are made it truly validates the struggle it is and outlines the exhaust those with TS face in their everyday lives.<\/p>\n\n\n\n

Why would we make it up? Why would we make up the exhaust, pain, and struggle we face just to be invalidated by those online? It is an insane phenomenon that I hope doesn\u2019t continue, but in our world of constant contact and online fame it is one that undoubtedly will be seen again.<\/p>\n\n\n\n

View our PSAs about social media bullying and misrepresentation of TS. <\/a><\/em><\/p>\n","protected":false},"excerpt":{"rendered":"

Seeing teenagers and even adults faking Tourette Syndrome online is an exhausting experience as someone with diagnosed TS. 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