{"id":3776,"date":"2014-09-12T11:53:09","date_gmt":"2014-09-12T15:53:09","guid":{"rendered":"https:\/\/njcts.org\/teens4ts\/?p=3776"},"modified":"2014-09-12T11:53:09","modified_gmt":"2014-09-12T15:53:09","slug":"one-of-our-researchers-talks-about-life-with-her-younger-sister-who-lives-with-ts","status":"publish","type":"post","link":"https:\/\/njcts.org\/teens4ts\/one-of-our-researchers-talks-about-life-with-her-younger-sister-who-lives-with-ts\/","title":{"rendered":"One of our researchers talks about life with her younger sister who lives with TS"},"content":{"rendered":"

This blog is written by Diana Beljaars a PhD researcher from Cardiff University in Wales. Diana is originally from Holland and speaks Dutch and English. In this blog article she writes poignantly about her relationship with her sister who has Tourettes Syndrome.<\/em><\/p>\n

My Touretty sister and me<\/strong><\/p>\n

Tourette\u00b4s has been part of my life for many, many years, but came into it since early puberty. Before that time memories stretch back to winter afternoons playing in our play corner under the stairs and summer afternoons playing under the pine tree in the back yard of our parents\u00b4 house. Youth pictures in my album mimic the light-heartedness of my memories remarkably well. She was just my sister, annoying as little sisters are, but equally as cute\u2026<\/p>\n

Then, things changed. She started doing \u2018funny things\u2019 with her eyes and nose, and I remember her being taken to an unending list of doctors. As an unknowing sibling in early puberty herself, I felt her withdrawing from my life, being taken up by her condition.<\/p>\n

I, as everyone else, couldn\u2019t quite relate to her as I used to. The condition, that finally could be named Tourette syndrome, both mystified and coloured the image I had of my sister. Sometimes she seemed too far away to connect at all, consumed by her body that made her do things she didn\u2019t want.<\/p>\n

Sometimes she did things that intrigued me but could never be understood by me. For instance, not being able to carry the plates with cutlery on them to the kitchen after dinner \u201cbecause she just couldn\u2019t\u201d. Nonetheless, we fought as fiercely as we found each other in shared obsessions, such as the holiday without our parents in Italy. Despite me not being able to predict her, she was still my little sister and I felt deeply responsible for her. It might be the type felt by each older sister, but maybe also because of her unique vulnerability. Our years in early twenties we grew more apart, as I went off to university. Dealing with my own problems, she left my mind bit by bit.<\/p>\n

It was only at the end of my studies in human geography (a social science concerned with the spatial relationship between people and places) that suddenly it hit me: my sister\u2019s condition had highly spatial pronunciation. With her touch tics she used the objects that made up her everyday environments in a such a specific and unique way that I decided to combine my understanding of the disorder and knowledge and skill human geography. With the research proposal she came flaming back into my life.<\/p>\n

We went to a conference on Tourette\u2019s in Greece where she, as subject of their study, spoke to a big room filled with people. Twice. I couldn\u2019t be more proud of her. It was in that moment that I recognised the little girl I used to play with in her. I realised that she couldn\u2019t have been more herself in the moment, and that the Tourette\u2019s had never mystified and coloured her: it was me the whole time. I, as product of a society that values the normal and logical in people drastically failed in understanding the beauty in her tics and twitches. Now, my sister and I get along better than ever. She is just my sister, annoying as little sisters are, but equally as cute.<\/p>\n

If my research is good for anything, it is in the fact that an inability to relate to a different form of humanity should invoke an openness to its capacities. Or put simply, if you can\u2019t understand why somebody else is different, you should be open to understand what makes him\/her beautiful and capable of extraordinary achievement.<\/p>\n

Diana’s sister has been blogging for Teens4TS for more than 2 years now. Read all about her adventures here!<\/strong><\/a><\/em><\/p>\n","protected":false},"excerpt":{"rendered":"

This blog is written by Diana Beljaars a PhD researcher from Cardiff University in Wales. Diana is originally from Holland and speaks Dutch and English. In this blog article she writes poignantly about her relationship with her sister who has… Continue Reading →<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":"","_links_to":"","_links_to_target":""},"categories":[8],"tags":[34,47,117,127,254,323],"yoast_head":"\nOne of our researchers talks about life with her younger sister who lives with TS - Teens4TS<\/title>\n<meta name=\"description\" content=\"This blog is written by Diana Beljaars a PhD researcher from Cardiff University in Wales. 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