{"id":364,"date":"2012-01-31T15:00:46","date_gmt":"2012-01-31T20:00:46","guid":{"rendered":"https:\/\/njcts.org\/teens4ts\/?p=364"},"modified":"2012-01-31T15:00:46","modified_gmt":"2012-01-31T20:00:46","slug":"teens-what-do-you-think-about-the-mystery-ny-tourette-syndrome-cases","status":"publish","type":"post","link":"https:\/\/njcts.org\/teens4ts\/teens-what-do-you-think-about-the-mystery-ny-tourette-syndrome-cases\/","title":{"rendered":"Teens: What do you think about the mystery NY Tourette Syndrome cases?"},"content":{"rendered":"<p>By now, many of you likely have heard about the case of the now more than two dozen LeRoy, N.Y., students who developed Tourette Syndrome-like symptoms and tics in December. Various\u00a0<strong><a href=\"http:\/\/healthland.time.com\/2012\/01\/31\/mysterious-twitching-outbreak-in-n-y-teen-girls-what-is-mass-psychogenic-illness\/?xid=gonewsedit\" target=\"_blank\">news reports<\/a><\/strong>, medical claims and reports by experts since have been all over the Internet.<\/p>\n<p>There are many different theories out there about what exactly contributed to the onset of these TS-like symptoms, but according to Wikipedia, the school was tested for toxins and all other factors for their symptoms were ruled out, the students were diagnosed with a &#8220;mass psychogenic illness&#8221; resulting from stress.<\/p>\n<p>What we at Teens4TS want to know is this: What do you think of this entire case? Does it help or hurt Tourette Syndrome advocacy? If you or someone you know has TS, how does this entire case make you feel? Do you agree with the ultimate diagnosis of these students? Do you think they are faking? What is your opinion about some of the things said by the doctors and experts in this case?<\/p>\n<p>Several parents from all over the country already have weighed in with their thoughts, which you can check out on the <strong><a href=\"https:\/\/njcts.org\/tsparents\/parents-what-do-you-think-about-the-mystery-ny-tourette-syndrome-cases\" target=\"_blank\">TSParentsOnline<\/a><\/strong> blog. We would love to hear your opinion, too, and you can let your voice be known about this very important, trending topic in one or more of several ways:<!--more--><\/p>\n<ul>\n<li>By leaving a comment in this blog entry&#8217;s comments section<\/li>\n<li>By logging on to our\u00a0<strong><a href=\"http:\/\/www.facebook.com\/Teens4TS\" target=\"_blank\">Facebook<\/a><\/strong>\u00a0page and leaving a comment on our wall or under the status update about this topic<\/li>\n<li>By logging on to our\u00a0<strong><a href=\"http:\/\/twitter.com\/Teens4TS\" target=\"_blank\">Twitter<\/a><\/strong>\u00a0page and sending us a tweet<\/li>\n<li>By sending an e-mail to\u00a0<strong><a href=\"teens@njcts.org\" target=\"_blank\">teens@njcts.org<\/a><\/strong>.<\/li>\n<\/ul>\n<div>\n<p>It&#8217;s that simple. Each time we get a response by e-mail, Facebook or Twitter, we&#8217;ll post it below. Comments submitted on the blog itself will stay in the comments section. We encourage the entire TS community to respond and put forth an opinion.<\/p>\n<p>Who knows, the right people just might notice and some of the confusion surrounding this case could be cleared up!\u00a0In the meantime, check out these links posts from <strong><a href=\"https:\/\/njcts.org\/tsparents\/daily-tourette-syndrome-links-tuesday-jan-24\" target=\"_blank\">Jan. 24<\/a><\/strong>,\u00a0<strong><a href=\"https:\/\/njcts.org\/tsparents\/daily-tourette-syndrome-links-friday-jan-27\" target=\"_blank\">Jan. 27<\/a><\/strong> and <strong><a href=\"https:\/\/njcts.org\/tsparents\/daily-tourette-syndrome-links-tuesday-jan-31\" target=\"_blank\">Jan. 31<\/a>\u00a0<\/strong>for more about what is going on in LeRoy, N.Y.<\/p>\n<p><strong>Kayley T. says &#8230;<\/strong> &#8220;The Leroy girls seem to be faking, right?\u00a0 None of them have a biological illness, as indicated by dozens of diagnostic tests by specialists.\u00a0The story from Leroy, N.Y., seems fantastical, but in fact, it&#8217;s completely plausible.\u00a0And I don&#8217;t think they&#8217;re faking.\u00a0I don&#8217;t think it was environmental, nor do I think they&#8217;re infected with some strange disease. There are records of outbreaks of mass psychogenic illness throughout history; dancing mobs in the middle ages, tales of women from a convent who all mewed like kittens, the Salem Witch Trials and many more.<\/p>\n<p>&#8220;I understand why people think they&#8217;re faking; they don&#8217;t understand Conversion Disorder (psychogenic seemingly neurological symptoms), but I do.\u00a0In addition to often disabling tics from TS I&#8217;ve had since I was 5 or 6, I have Conversion Disorder.\u00a0Like the girls in N.Y., there was no catastrophic stressor to trigger my symptoms, they simply appeared from thin air.\u00a0This happens.\u00a0More than 20 percent\u00a0of women at some point in their lives have psychogenic symptoms.<\/p>\n<p>&#8220;Women with Conversion Disorder outnumber men with it 3 to 1, and some studies cite an even greater discrepancy.\u00a0So it&#8217;s no wonder why the original cases were all girls, and also gives insight to why they may be prone to it.\u00a0\u00a0I just wish people would stop accusing the girls of faking.\u00a0Who would fake this?\u00a0Converison first left me paralyzed, then caused terrible spasms that lasted for hours. My conversion symptoms induced immobility of my body, which seemed to protect me from my painful self-injurious motor tics, which were constant at the time.\u00a0<\/p>\n<p>&#8220;The girls who are dealing with recent onset tics aren&#8217;t alone.\u00a0I just wish they knew it!\u00a0 The best news for them is that Conversion Disorder is rarely permanent.&#8221;<\/p>\n<\/div>\n","protected":false},"excerpt":{"rendered":"<p>By now, many of you likely have heard about the case of the now more than two dozen LeRoy, N.Y., students who developed Tourette Syndrome-like symptoms and tics in December. Various\u00a0news reports, medical claims and reports by experts since have&hellip; <a href=\"https:\/\/njcts.org\/teens4ts\/teens-what-do-you-think-about-the-mystery-ny-tourette-syndrome-cases\/\" class=\"more-link\">Continue Reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":279,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":"","_links_to":"","_links_to_target":""},"categories":[6,11],"tags":[25,185,191,220,265,314],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v22.4 (Yoast SEO v22.4) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Teens: What do you think about the mystery NY Tourette Syndrome cases? - Teens4TS<\/title>\n<meta name=\"description\" content=\"By now, many of you likely have heard about the case of the now more than two dozen LeRoy, N.Y., students who developed Tourette Syndrome-like symptoms\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/njcts.org\/teens4ts\/teens-what-do-you-think-about-the-mystery-ny-tourette-syndrome-cases\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Teens: What do you think about the mystery NY Tourette Syndrome cases?\" \/>\n<meta property=\"og:description\" content=\"By now, many of you likely have heard about the case of the now more than two dozen LeRoy, N.Y., students who developed Tourette Syndrome-like symptoms\" \/>\n<meta property=\"og:url\" content=\"https:\/\/njcts.org\/teens4ts\/teens-what-do-you-think-about-the-mystery-ny-tourette-syndrome-cases\/\" \/>\n<meta property=\"og:site_name\" content=\"Teens4TS\" \/>\n<meta property=\"article:published_time\" content=\"2012-01-31T20:00:46+00:00\" \/>\n<meta name=\"author\" content=\"Teens4TS\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Teens4TS\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/njcts.org\/teens4ts\/teens-what-do-you-think-about-the-mystery-ny-tourette-syndrome-cases\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/njcts.org\/teens4ts\/teens-what-do-you-think-about-the-mystery-ny-tourette-syndrome-cases\/\"},\"author\":{\"name\":\"Teens4TS\",\"@id\":\"https:\/\/njcts.org\/teens4ts\/#\/schema\/person\/d1917b477e6728b1bbceef7dcc60a4e3\"},\"headline\":\"Teens: What do you think about the mystery NY Tourette Syndrome cases?\",\"datePublished\":\"2012-01-31T20:00:46+00:00\",\"dateModified\":\"2012-01-31T20:00:46+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/njcts.org\/teens4ts\/teens-what-do-you-think-about-the-mystery-ny-tourette-syndrome-cases\/\"},\"wordCount\":670,\"commentCount\":9,\"publisher\":{\"@id\":\"https:\/\/njcts.org\/teens4ts\/#organization\"},\"keywords\":[\"Advocacy\",\"LeRoy Mystery\",\"Links\",\"Opinion\",\"School\",\"Tics\"],\"articleSection\":[\"Admin Posts\",\"Teens\"],\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\/\/njcts.org\/teens4ts\/teens-what-do-you-think-about-the-mystery-ny-tourette-syndrome-cases\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/njcts.org\/teens4ts\/teens-what-do-you-think-about-the-mystery-ny-tourette-syndrome-cases\/\",\"url\":\"https:\/\/njcts.org\/teens4ts\/teens-what-do-you-think-about-the-mystery-ny-tourette-syndrome-cases\/\",\"name\":\"Teens: What do you think about the mystery NY Tourette Syndrome cases? 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