{"id":3158,"date":"2013-09-26T15:08:42","date_gmt":"2013-09-26T19:08:42","guid":{"rendered":"https:\/\/njcts.org\/teens4ts\/?p=3158"},"modified":"2013-09-26T15:08:42","modified_gmt":"2013-09-26T19:08:42","slug":"my-letter-to-congress-about-supporting-tourette-syndrome-legislation","status":"publish","type":"post","link":"https:\/\/njcts.org\/teens4ts\/my-letter-to-congress-about-supporting-tourette-syndrome-legislation\/","title":{"rendered":"My letter to Congress about supporting Tourette Syndrome legislation"},"content":{"rendered":"
I support H.R. 146, the Collaborative Academic Research Efforts for Tourette Syndrome Act of 2013<\/strong><\/a>. I have had Tourette Syndrome since I was 5 years old. Battling with the disorder has brought struggle throughout the years; emotionally, physically, socially and financially. I cannot express how much stress and pain I have been through (especially considering those factors make tics get worse).<\/p>\n However, when I started working with the New Jersey Center for Tourette Syndrome & Associated Disorders (NJCTS<\/strong><\/a>), they brought new resources and knowledge that gave me hope that there would someday be a cure; I knew I wanted to be a part of that difference. Through NJCTS, I have been trained to be a peer advocate and youth advocate so I can educate people about Tourette Syndrome.<\/p>\n After all, the more people that know what the disorder is, the better chance that someone will find interest in the subject and find a cure. This bill is absolutely necessary, not only for this generation of kids, but for future generations as well. With the deepest respect and passion, I ask EVERY Senator and Representative of Congress to sign this bill. It may or may not affect your life, but the Tourette community depends on it. Thank you.<\/p>\n To join me in supporting this important bill, please visit the POPVOX<\/strong><\/a> website today. It’ll only take a few seconds of your time and could change the lives of so many. Thank you!<\/em><\/p>\n","protected":false},"excerpt":{"rendered":" I support H.R. 146, the Collaborative Academic Research Efforts for Tourette Syndrome Act of 2013. I have had Tourette Syndrome since I was 5 years old. Battling with the disorder has brought struggle throughout the years; emotionally, physically, socially and… Continue Reading