{"id":2382,"date":"2013-04-08T11:30:06","date_gmt":"2013-04-08T15:30:06","guid":{"rendered":"https:\/\/njcts.org\/teens4ts\/?p=2382"},"modified":"2013-04-08T11:30:06","modified_gmt":"2013-04-08T15:30:06","slug":"high-school-students-learn-lots-about-tourette-syndrome-from-fellow-student","status":"publish","type":"post","link":"https:\/\/njcts.org\/teens4ts\/high-school-students-learn-lots-about-tourette-syndrome-from-fellow-student\/","title":{"rendered":"High school students learn lots about Tourette Syndrome from fellow student"},"content":{"rendered":"

\"Amanda1\"<\/a>When Amanda Silvers first contacted Spotswood Public Schools to gauge their interest in having the New Jersey Center for Tourette Syndrome & Associated Disorders\u2019 (NJCTS) in-service presentation on TS come to their district, Director of Special Services\/Programs Daniel Silvia was thrilled and offered to have Silvers come talk to three psychology classes at Spotswood High School.<\/p>\n

Imagine how thrilled Silvers was when, following her third presentation on March 28, a thoroughly impressed Silvia sought out three more classes to which Silvers could present that day. All told, Silvers spread awareness about Tourette \u2013 a misunderstood, misdiagnosed, inherited neurological disorder that affects 1 in 100 children and adults \u2013 to six classes and 138 people total.<\/p>\n

Silvers, an East Brunswick High School senior and an NJCTS Youth Advocate who has been giving presentations on behalf of the organization for more than 2 years, spent the majority of her time answering the questions of students on the heels of a query of her own:<\/p>\n

\u201cHow many of you have ever heard of Tourette Syndrome or know anyone with it?\u201d<\/p><\/blockquote>\n

Just 3 out of 75 students and teachers \u00a0in the first three audiences \u2013 advanced placement and regular psychology classes taught by Colleen Meyers \u2013 answered \u201cyes.\u201d After Silvers gave them a primer about Tourette \u2013 the definition of vocal and motor tics, when children are often diagnosed, who is affected by TS, etc. \u2013 she fielded an array of questions. Following are some of those queries, in question-and-answer format:<\/p>\n

\"Amanda2\"<\/a>Student Question:<\/strong> \u201cWhen did you and your family start noticing that you had symptoms?\u201d<\/p>\n

Silvers Answer:<\/strong> \u201cIn preschool and kindergarten, teachers noticed and recommended that I get checked out because of I was hopping, blinking and not paying attention. But I wasn\u2019t officially diagnosed until age 5.\u201d<\/p>\n

Question: <\/strong>\u201cAre there any medications for TS?\u201d<\/p>\n

Answer:<\/strong> \u201cThere are none specifically, but there are anti-anxiety, anti-psychotic and blood pressure meds. Which you can take depends on your body chemistry, and everyone and everything is different. I take blood pressure meds, which can control the tics, but it doesn\u2019t make them go away completely.\u201d<\/p>\n

Question:<\/strong> \u201cDoes your Tourette ever go away?\u201d<\/p>\n

Answer:<\/strong> \u201cNever, but tics wax and wane. Some days are worse than others, especially when I get stressed out and moody \u2018off the walls.\u2019 You can grow out of tics and get new ones. I hopped when I was little. Now, I bang my head on the wall or pick my skin or pull my hair sometimes.\u201d<\/p>\n

Question:<\/strong> \u201cDo you have a lot of friends who support you no matter what?\u201d<\/p>\n

Answer:<\/strong> \u201cI have a very strong group of friends who are very supportive. If someone is not going to be supportive, they are not being supportive of me and shouldn\u2019t be my friend. If people don\u2019t like my tics, then they shouldn\u2019t bother being near me. My friends see me and not my disorder.\u201d<\/p>\n

Question:<\/strong> \u201cHow have your teachers been about it?\u201d<\/p>\n

Answer:<\/strong> \u201cMost have been very understanding, but I\u2019ve had a few that have been not so good. One teacher last year kicked me out of the classroom, and she was supposed to be one of the most understanding teachers because she was a special needs teacher. She said that students were being disturbed by me and kicked me out into the hallway. My family and I, to this day, have not received an apology from the teacher.\u201d<\/p>\n

Question:<\/strong> \u201cDoes it affect relationships?\u201d<\/p>\n

Answer:<\/strong> \u201cI don\u2019t have time for boys.\u201d<\/p>\n

Question:<\/strong> \u201cCan you swim?\u201d<\/p>\n

Answer:<\/strong> \u201cYeah, I can swim. I can do anything that you guys can do.\u201d<\/p>\n

Question:<\/strong> \u201cDo you curse because of your Tourette?\u201d<\/p>\n

Answer:<\/strong> \u201cNo, I don\u2019t have that tic. That\u2019s called coprolalia, and only 10 percent of people with Tourette actually have that. That\u2019s what society seems to think of TS. The only way to stomp out the ignorance is to educate further and make sure that people know about the disorder.\u201d<\/p>\n

Question:<\/strong> \u201cDoes anyone ever ask you what\u2019s wrong with you?\u201d<\/p>\n

Answer: <\/strong>\u201cI\u2019m always open to explaining it to people. If I see someone staring at me, I\u2019ll tell them that I have Tourette and what it is. It\u2019s important to show that you\u2019re not afraid.\u201d<\/p>\n

Meyers was extremely impressed with Silvers\u2019 presentations and hopes to see Silvers come back to the Spotswood School District to discuss Tourette Syndrome with younger students, especially those around the same age group as when most children with TS are diagnosed \u2013 6 to 9 years old.<\/p>\n

\u201cIt was amazing the way Amanda could open up and tell her story, provide a wealth of information about the disorder and create an atmosphere where students felt free to ask a variety of questions,\u201d said Meyers, who presented Silvers with plenty of queries herself. \u201cIt\u2019s difficult for an 18-year-old to relate a story in front of other 18-year-old. I was impressed with the amount of questions that the students \u2013 not just about the disorder, but about her positive and negative social interactions. She made them feel comfortable, and I think she could do that for a variety of age groups.\u201d<\/p>\n

Silvers is just one of many teenagers around New Jersey giving these in-service presentations on behalf of NJCTS. The presentations are designed to foster understanding, sensitivity and tolerance of Tourette Syndrome and its symptoms by describing the symptoms, causes and effects of the disorder.\u00a0They also work to displace the myths and stereotypes that are often attributed to TS and contain a strong anti-bullying message.<\/p>\n

Student presenters may or may not have TS or an associated disorder such as OCD, ADHD, anxiety or depression themselves, though all have first-hand experience with one or most of them. Student-led in-service presentations are appropriate for all age groups and can be used in the school setting, for sports leagues, scout troops, camps or after-school programs. More information about this program is available by calling 908-575-7350 or by visiting www.njcts.org<\/a><\/strong>.<\/p>\n","protected":false},"excerpt":{"rendered":"

When Amanda Silvers first contacted Spotswood Public Schools to gauge their interest in having the New Jersey Center for Tourette Syndrome & Associated Disorders\u2019 (NJCTS) in-service presentation on TS come to their district, Director of Special Services\/Programs Daniel Silvia was… Continue Reading →<\/span><\/a><\/p>\n","protected":false},"author":279,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":"","_links_to":"","_links_to_target":""},"categories":[6],"tags":[38,53,79,90,136,212,237,244,251,265,287,297,305,309,314,358],"yoast_head":"\nHigh school students learn lots about Tourette Syndrome from fellow student - Teens4TS<\/title>\n<meta name=\"description\" content=\"When Amanda Silvers first contacted Spotswood Public Schools to gauge their interest in having the New Jersey Center for Tourette Syndrome &\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/njcts.org\/teens4ts\/high-school-students-learn-lots-about-tourette-syndrome-from-fellow-student\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"High school students learn lots about Tourette Syndrome from fellow student\" \/>\n<meta property=\"og:description\" content=\"When Amanda Silvers first contacted Spotswood Public Schools to gauge their interest in having the New Jersey Center for Tourette Syndrome &\" \/>\n<meta property=\"og:url\" content=\"https:\/\/njcts.org\/teens4ts\/high-school-students-learn-lots-about-tourette-syndrome-from-fellow-student\/\" \/>\n<meta property=\"og:site_name\" content=\"Teens4TS\" \/>\n<meta property=\"article:published_time\" content=\"2013-04-08T15:30:06+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/njcts.org\/teens4ts\/wp-content\/uploads\/2013\/04\/Amanda1-300x225.jpg\" \/>\n<meta name=\"author\" content=\"Teens4TS\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Teens4TS\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"5 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/njcts.org\/teens4ts\/high-school-students-learn-lots-about-tourette-syndrome-from-fellow-student\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/njcts.org\/teens4ts\/high-school-students-learn-lots-about-tourette-syndrome-from-fellow-student\/\"},\"author\":{\"name\":\"Teens4TS\",\"@id\":\"https:\/\/njcts.org\/teens4ts\/#\/schema\/person\/d1917b477e6728b1bbceef7dcc60a4e3\"},\"headline\":\"High school students learn lots about Tourette Syndrome from fellow student\",\"datePublished\":\"2013-04-08T15:30:06+00:00\",\"dateModified\":\"2013-04-08T15:30:06+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/njcts.org\/teens4ts\/high-school-students-learn-lots-about-tourette-syndrome-from-fellow-student\/\"},\"wordCount\":995,\"commentCount\":2,\"publisher\":{\"@id\":\"https:\/\/njcts.org\/teens4ts\/#organization\"},\"image\":{\"@id\":\"https:\/\/njcts.org\/teens4ts\/high-school-students-learn-lots-about-tourette-syndrome-from-fellow-student\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/njcts.org\/teens4ts\/wp-content\/uploads\/2013\/04\/Amanda1-300x225.jpg\",\"keywords\":[\"Awareness\",\"Bullying\",\"Coprolalia\",\"Diagnosis\",\"Friends\",\"NJCTS\",\"Presentations\",\"Questions\",\"Relationships\",\"School\",\"Stigma\",\"Support\",\"Teachers\",\"Teens4TS Showcase\",\"Tics\",\"Youth Advocate\"],\"articleSection\":[\"Admin Posts\"],\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\/\/njcts.org\/teens4ts\/high-school-students-learn-lots-about-tourette-syndrome-from-fellow-student\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/njcts.org\/teens4ts\/high-school-students-learn-lots-about-tourette-syndrome-from-fellow-student\/\",\"url\":\"https:\/\/njcts.org\/teens4ts\/high-school-students-learn-lots-about-tourette-syndrome-from-fellow-student\/\",\"name\":\"High school students learn lots about Tourette Syndrome from fellow student - 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