Hey guys, as some of you may know, there is currently legislation in Congress that would amend the Public Health Service Act (introduced by New Jersey Congressman Albio Sires) with the goal of establishing regional centers of excellence across the country to conduct research into the cause, diagnosis, early detection, prevention, control and treatment of Tourette Syndrome and associated disorders.
Right now, the bill is in the beginning stages of a piece of legislation’s “life cycle.” Before any bill goes into debate by Congress and the Senate, they first are checked out by several committees. These committees investigate, revise and deliberate them before any further action is taken.
Unfortunately, the vast majority of resolutions and bills that are in this stage never make it out of committee. It is for this reason that we need all the help and support we can get in order to have this bill written into law. I’ve already voiced my opinion and contacted our state representatives. Now you guys have to do the same!
A simple and quick way to make your voice heard is to use the POPVOX system, which automatically allows you to write to your member of Congress in support of this bill. Here are five simple steps to take:
- Click here to head to the TS bill’s site on POPVOX.
- Then, once you’re on the POPVOX page, click SUPPORT.
- You then will be taken to a second screen “SEND A LETTER TO CONGRESS,” in which you have the option of telling your member of Congress a personal story or why you think this legislation is important. If you click “yes,” add the statement you wish to share. If you click “no,” you will be taken directly to the next screen.
- Next, “REGISTER YOUR POSITION.” Here you enter your e-mail address, a screen name and password. An e-mail will be then sent to that address asking you to finish creating your account. That e-mail will include a link.
- When you click on that final link, you will be taken to a screen to fill in information about yourself for your member of Congress (name, address, phone number). Your member of Congress will then receive an e-mail stating that you support the legislation (and will include the personal statement, if you wrote one).
As Congressman Sires stated, “It is my hope that through this legislation, we can grasp a better understanding of Tourette Syndrome and in turn, help enhance the lives of so many.”
It’s certainly great to know that we have people up in Congress on our side, and it makes it a whole lot better to have support for something that we believe in. The passing of this bill into law would be a huge victory for the TS community and those affected by the syndrome everywhere. Spread the word now and let your voice be heard!