From my experience running this page and from my experience working in a Tourette’s research lab, I have noticed that a lot of parents with children with Tourette’s — particularly those who have children who are new to the diagnosis or are in the process of being diagnosed — are not aware of the wide range of tics that exist.
Also, those who do not have a child or another loved one in their life who has TS especially do not understand the wide range of tics that can exist or don’t recognize tics when they happen. I hear from parents that they are frustrated with extended family members who do not understand what things are tics and what things are not.
In response to this, I have decided that with your help over my winter break I am going to try to make a video resource for parents and extended family members of individuals with TS. This video resource will help show the wide variety of tics and will help others to begin to recognize tics, what they are, and how they affect an individual with TS.
I need YOUR help in order to create this resource though! I need videos of your kids tics or your tics. Here’s what to do if you want to participate/ help out with this project:
- Take a video of yourself of your child saying “Hi, my name is….and I have Tourette’s Syndrome”
- Then either in the same video or in a separate video either film your child’s tics or film a video of your child describing their tics. Either one works! Also if you have previous videos of your children’s or your tics, you can send those in as well.
- Upload the videos to YouTube as “unlisted”, then send me the links! This will allow only those with the link to the video to view the video. The video will not yet be public. You can send the links to either my inbox on this page or to my e-mail: firstname.lastname@example.org
That’s it! It’s that simple! If you have any questions about this project, feel free to ask. I can’t wait to see your videos! If you are interested in participating, please comment so I know how many videos to expect!