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I am proud to be a youth advocate for Tourette Syndrome!

Because of all of your efforts supporting Tourette Syndrome, the Collaborative Academic Research Efforts (CARE) for Tourette Syndrome Act of 2013 has been reintroduced in the House of Representatives!

What does this mean? If passed, there will be a bill that will help all of us with TS. The primary purpose of the bill is to establish regional centers of excellence nationwide that will conduct research, diagnose, prevent, control, and treat TS and associated disorders such as OCD, ADHD and anxiety.

I was diagnosed with TS at the age of 6, and it has really influenced my life. The bullying factor of this misunderstood neurological disorder really affected my friendships throughout elementary school and middle school.

Legislation must be passed to help and protect the children and adults affected by this disorder. I agree with Congressman Sires, “Through this legislation, we can grasp a better understanding of Tourette Syndrome and, in turn, enhance the lives of many people.”

I hope that the bill goes through. The idea to have nationwide regional centers is superb. I am proud to be a part of the New Jersey Center for Tourette Syndrome (NJCTS), the nation’s first center of excellence for TS. This year I was named Youth Advocate of the Year for NJCTS. I am thrilled to have this honor am grateful to be part of the NJCTS family.

Oh, and come meet me on April 14 when NJCTS hosts its first NJ Walks For TS at Ramapo College!

EmilyF

9 Comments

    • Emily, this is Jeff from NJCTS … you totally should have an acceptance speech. Let’s talk about that. Great for a photo op and story at the event! I have the pencils for you for next week. Melissa and I will see you then. E-mail me if you need anything else.

    • Are you going to have an acceptance speech when you get the award? That would be so cool.

  1. congrats on ur award!!! u deserve it. i read up bout all uve done on the ts site and its unbelievable. u rock!

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