By: Ryder Pollack
Life has a funny way of shaping us. It is full of ups, and downs, unexpected turns—and if we’re lucky, some meaningful growth. For me, living with Tourette Syndrome (TS) has been one of those life-shaping experiences. It has not always been easy, but it’s pushed me to grow, speak up, and discover a version of myself I didn’t know existed.
I never imagined that advocacy would be a big part of my life. When I first started, public speaking was just something I was trying to get better at. But over time, it became something I loved. As a Junior Ambassador and Youth Advocate with NJCTS, I have had the chance to share my story—and in doing so, I’ve found my voice. And it’s not just my voice anymore. Other youth advocates speak up for others living with TS, too.
One of the moments that stuck with me was a visit to Mantua Public Schools. Standing in front of hundreds of curious students, I talked about what it’s like to live with TS—what it means, how it affects me, and how I manage it daily. Their questions were so thoughtful—everything from “Can you still drive to the supermarket?” to “How do you deal with hard days?” It reminded me why I spoke out in the first place. Helping kids understand TS breaks down so many misconceptions and makes the world a little more accepting, one classroom at a time.
I’ve had so much support along the way, especially from NJCTS. They have given me opportunities I never thought I could have—to speak, to lead, to connect. Attending the Tim Howard Leadership Academy was especially eye-opening. The four pillars—Self-Leadership, Self-Advocacy, Resilience, and Grit—helped me see TS not as a weakness, but as something that’s shaped me into a stronger person. I learned to embrace every part of who I am and to use my story to empower others.
Being an advocate has also encouraged me to engage in some amazing experiences in the broader community as well. Some of these experiences are as follows, volunteering with the Miracle League of Mercer County, the Trenton Area Soup Kitchen which has shown me the power of service and respect. Giving back to your community isn’t just about helping others—it is about building connections, growing empathy, and realizing how much stronger we are when we lift each other up. For me, TS is not just a diagnosis—it is a part of my life story. A story of learning, growth, and realizing that our differences can be our biggest strengths. Through every speech, every student interaction, and every conversation, I have grown more confident. I have learned that when we use our voices to advocate, educate, and connect—we can make a real difference in the world as a whole.
So if you’re facing something hard, just know this: Your story matters. Your voice matters. Don’t be afraid to share it—because you never know who needs to hear it.
